Category: Marriage

What now? Stormy gears up for the long haul by creating a sanity plan

On By StormyIn Attitude, Faith, Family, Getting older, Health/fitness, Marriage, Politics, Relationships, Work/careersLeave a comment

Over the last several years, Stormy has been seeking direction.

When I was unexpectedly laid off in 2022, my subsequent job search revealed what I had always suspected—that marketing is a particularly age-sensitive field and age discrimination is real. Yet, it felt too soon for me to retire, so I decided to do some fractional CMO consulting work while I figured out my next steps. Marketing consulting is a tough gig for an introvert. In addition to marketing your clients products and services, you have to spend equal time marketing yourself.

As I was in this consulting phase, another marketing colleague was telling me about their new client who ran a MedSpa type of business, offering Botox, fillers and other “aesthetic” treatments. I was surprised (and dismayed) to learn that their target market was in their 30s! And while I won’t judge anyone for personally choosing treatments that may make them feel better about their appearance, I know that to effectively sell these products to thirtysomethings, a marketer would need to inject fear and insecurity into their hearts before they would agree to inject Botox into their young faces.

In today’s uncertain business environment, it’s difficult to pass up a paying client… yet, I’ve reached the stage in my career where I’m only interested in working with people and organizations whose values, products and services align with mine. Yet, I genuinely enjoy the social aspects of working, learning new things, and making a difference.

Meanwhile, on the home front, Oskar and I were discovering that you can’t outrun Parkinson’s indefinitely—although God knows, we’ve tried. Changes in his condition, like no longer being able to drive, are now requiring me to spend more time being a caregiver (a role that, anyone could tell you, I wasn’t exactly born for). 

The progression of Oskar’s PD symptoms also led to a host of related lifestyle changes this past summer: Moving from a condo with two stories to an apartment where all our living space is on one level, renting out our vacation condo, and downsizing half of our “stuff” to fit our belongings into the new, smaller space. 

When I had time to reflect on my situation—not loving consulting work, wanting more control over the products, services or causes that my efforts were going toward, and the need for a more flexible schedule at home to accommodate my husband’s illness—I had to ask myself… Was it finally time for me to retire? And what would that even look like? Oskar’s daily challenges made the stereotypical active retirement—lots of activities and travel—less feasible, so how would I fill my time? KitKat and I started this blog more than a decade ago (can you believe it?!) and in that time, I’ve reinvented myself again and again. Yet still I’ve felt aimless and discouraged. A friend suggested to me that as I face what is likely to be a more challenging stage with Oskar’s illness, that I needed find a way to not only accept my reality, but embrace it. To live a life of purpose vs. mere tolerance.

I’m still nearly a decade away from “retirement age,” but if there is one benefit of having a spouse be diagnosed with a serious condition at a relatively young age it’s this: It forced us to financially prepare for an unknown future. As a result, we never really subscribed to “lifestyle creep” as our incomes grew, but rather, we put as much as we could into savings—so that if either of us had to retire early, we would have the freedom to do that. 

I was mulling over my friend’s advice, but with all the downsizing/moving activity this summer, it was easy for me to push out any decisions about what to do next. So that’s what I did. I also knew that once the move was complete the election season would be in full throttle, and I couldn’t make a decision about my future without knowing what our nation’s future might hold. With Biden stepping down and Harris quickly pulling together an amazing level of support, I was hopeful and excited that we might finally get our country back on track. But I awoke in the early hours of Wednesday morning to headlines that absolutely shattered half the country. 

Talk about an unknown future!

After the initial shock wore off—replaced by a profound disappointment in my fellow Americans—I was surprised to find that I was oddly accepting of the situation. While I absolutely wish things had gone the other way, I firmly believe that some people can only learn important life lessons the hard way. And, unfortunately, this appears to be one of those times for many Americans. 

Anyone who has tried to reason with a MAGA cult member knows that you can’t. It’s the definition of An Exercise in Futility. Yet, because I have family members in the cult, I nevertheless persisted. For so much of the last decade, I have felt like we were at war with the mythological Hydra: Chop off one ugly head and a couple more appeared in its place. Lies. Disinformation. Hatred. Racism. Misogyny. Homophobia. Over and over. In addition to any personal challenges I was facing, I was constantly anxious and distracted by the news and social media. I found myself ignoring my health and using alcohol to calm my nerves. I lost my sense of joy. 

Just another day of defending the truth.

Last week, with my acceptance that Harris lost the election, came a realization that that particular battle was over. No, I’m not throwing in the towel on democracy. I will continue to work toward it. However, I’m no longer going to suit up and stare down the Hydra day after day. I’ve sacrificed a decade of my mental and physical health to an awful cult and I’m not going to give them another day. One week after winning the election, the incoming administration is already proposing a number of changes designed to undermine democracy. It’s clear to me that winning back our country will require a much longer-term strategy.

So where does that leave Stormy? One of my warrior outlaw in-laws sent a text on Wednesday saying she was working on a “sanity plan” for surviving these years under a wannabe dictator. I thought that was a great idea, but I took a slightly different approach. First, by drafting a personal Mission & Values Statement. Second, by drafting a Wellness Strategy. Together, I hope they will serve as my personal sanity plan. Here’s a high-level summary:

Mission & Values Statement

I believe that joy and positive relationships are essential to life, but each person must figure that out on their own (and some are slow learners). I will focus on cultivating joy in my own life by bringing my daily activities into greater alignment with my values:

  • Maintain perspective – The problems of our society won’t be solved overnight or even in my lifetime. Realize that I have been given privilege and talents that I should use to help others, while also taking the time to appreciate and enjoy my one life. 
  • Encourage beauty and creativity – I will do this by spending more time creating interesting and beautiful things, appreciating art and beauty, and helping other people live more creative lives. 
  • “Do all the good you can…” – My whole career has been using my writing to persuade people and win customers, now I plan to leverage that experience to advance the causes I most care about. I also want to teach some of these skills to disadvantaged groups to help level the playing field. 
  • Reclaim my religion – As a Christian, I’ve been particularly frustrated with the Christian Nationalist movement, as it basically contradicts every lesson Jesus taught and is responsible for driving people from the church in droves. Rather than abandon Christianity, I’m going to reclaim it and work harder to make sure people understand what Jesus preached—love for one’s neighbor without distinction for race, creed, gender or orientation. 
  • Stretch and grow – I will continue to try new things and won’t be afraid of failure. Since I’m no longer chasing a paycheck, I can no longer be “fired.” This means that I really cannot fail at anything I do (so long as I learn something along the way). I also know that engaging in learning and discovery are the best ways to stay interested and interesting. 
  • Accept that you can’t do it all – There are myriad ways for each of us to be useful in this world and everyone has a different role to play. Therefore, I may as well choose projects that fuel my personal enthusiasm and renew my spirit. 
  • Rest unapologetically – I’m going to implement my Wellness Strategy and pace myself, so I can continue these activities for as long as I can. I’m in this for the long haul. 

And, because I think this is extra important for so many of us now, I’d also like to share how I intend to do this.

Wellness Strategy

  • Limit exposure to 47 – This goes without saying. No more sneering orange face, no more grating, unintelligible voice. I can read analysis and transcripts to understand what he’s up to, but if I never see or hear from him again, that would be just ducky with me. Fortunately, there’s a good chance I’ll outlive him, and that will be a happy day indeed. 
  • Limit the news – Like many, I’ve become absolutely disgusted with the mainstream media for normalizing a despotic criminal and treating him like a legitimate candidate. Moreover, exposure to news 24/7 is unhealthy. Instead, I’ll be checking in once a day to get a synopsis from a few trusted sources and do my best to silence the chatter.
  • Limit social media – After the last election, I did some extreme curation of my social feeds. This was a lifesaver, and I will continue to keep my social media activity limited and positive. I want to spend more of my life offline than online. 
  • Stick with my tribe – Spend time strengthening my relationships with those who share my values. Avoid spending time with those who don’t. This isn’t the same as ostracizing those on the other side. It’s just choosing to preserve my peace. I’ll continue to work toward their deprogramming (“thoughts and prayers” anyone?), but I will not spend my time socializing with them. Unfortunately, this extends to family members. When some of them are willing to put a target on the backs of others, they cease to be family for me. If/when they realize their grave mistake and are ready to accept responsibility, I’ll be happy to welcome them back in my life.
  • Recharge and reset – Identify activities to proactively recharge my personal batteries before I “power off.” Spend time each week on creative projects to nourish my soul. Get out and attend museums, plays, lectures and other mind-broadening events. 
  • Embrace exercise and nature – Be physically active. Workout daily. Get out in nature regularly. Soak up the sunshine. Experience the weather. 
  • Focus on my health – Eat and drink in a healthy way. Reduce my sugar intake. No more using alcohol as an anti-anxiety med. No reliance on comfort meals that leave me feeling sluggish. Catch up on all the doctor’s appointments and screenings that I pushed out of the way when I was stressed or busy. 
  • Distract by diving in deep – Do meaningful volunteer work or start a side hustle or two. Learn new skills and subjects in order to advocate effectively. Keep myself distracted with useful, purposeful activity vs. doomscrolling and worrying about the future. Cross each bridge when I come to it. 

I found this exercise good for my psyche. It gives me a sense of purpose, but more importantly, it restores a sense of balance that I’ve been lacking for far too long. If last week’s election is leaving you feeling unmoored, I recommend taking a stab at your own sanity plan… and I’d love to hear about it. I want all my righteous peeps to not only survive, but thrive, in the difficult years ahead.

Stormy & KitKat for office? That’s just the ticket!

On By KitKatIn Attitude, Children, Family, Fashion/beauty, Girlfriends, Health/fitness, Marriage, Money, Parents, Random, Relationships, Work/careersLeave a comment

Someone recently posted on my Facebook page, “Stormy for President! I’d vote for you…” This made me laugh because I view politics as a necessary evil and generally identify as an Independent. I usually have very little to say on the topic and have only been opinionated this year because a madman is in the race. However, the post got me to thinking: “If I were running for president, what would my platform be? What are my beliefs and how do they define me?”

True to my apolitical roots, I’m going to stay away from foreign policy, gun control, and economics (although I have opinions on all of the above) and, as I’m running an honest, transparent campaign, I’m going to tell you what I really believe.*

It’s never too late – Maybe I’ve watched Scrooge too many times, but I honestly believe that everyone has the capacity to change—and at any time—so long as they want to. I keep hoping that will be the case with my 89-year-old mother, but I’m trying to balance that by having no expectations that she actually will change. That’s a tricky balance.

Find a penny, pick it up. All day long you’ll have good luck – I never walk past a penny on the ground without stopping to pick it up. It’s not that Stormy is cheap, but she is thrifty. At one time lack of finances was a very real issue for me, so I like to remind myself how far I’ve come and remember that it still is an issue for many others. Even if I’m blessed with a comfortable lifestyle, I never want to discount money’s worth—even if it’s a lowly penny—out of respect for those who must save every cent.

He who hesitates…is going to have to wait for me – I adhere to the rules of the road (in most cases) but if we come to a stop sign and you don’t go when it’s your turn, I’m not going to sit around waiting for you. I’m going.

moto_jacket
This jacket actually has Stormy looking forward to cooler weather…

Smart people buy used – There are people out there who think buying used is for “poor people” and won’t purchase anything that’s not in the original packaging. Poppycock. You get way more for your money buying certain items used (cars, clothes, everyday dishes and glasses). I’ve admitted to being a bit of a clotheshorse, but people don’t realize how much I purchase secondhand: Like my cashmere sweaterdress from Neiman Marcus, the Missoni dress I wore to my niece’s wedding reception or my new favorite: The black leather moto jacket I bought from ThredUp. The best thing about buying consignment clothes is you get a preview into how well they will hold up and can get high-quality threads for knock-off prices.

If you’re having a terrible day, end it – No, I’m not advocating suicide…just an earlier bedtime. Occasionally, despite our best efforts, some days just suck more than others…but getting a good night’s sleep can improve your whole perspective.

If you’re having lots of terrible days, do something about it – If your circumstances are making you miserable, change them. Oftentimes, the biggest hurdle standing between you and a positive change is your own attitude. Maybe you can’t make a wholesale life change (like quitting your job) immediately, but you can take steps toward change (like updating your resume or brushing up on a skill that will make you more marketable). If you absolutely cannot deal with your circumstances OR if your life is good but you’re still miserable for some unidentifiable reason, PLEASE SEEK PROFESSIONAL HELP.

All things in moderation – Fanatics (of any type) scare the shit out of me, so I stay away from environments that encourage fanaticism (sports play-offs, political rallies). I also try to understand both sides of an issue, because there are very few situations that are as black and white as they first appear. But I’ve found that this moderate approach works for other things as well. Dieting? If you deny yourself your favorite foods, it’s probably just a matter of time before you fall off the wagon. If you satisfy those cravings with a moderate amount of chips (or whatever) on occasion, it may take a little longer to lose the weight, but you’ll be more likely to stick with your overall eating plan.

Big changes start with small steps – There’s power in motion and sometimes great achievements are made through lots of little mundane steps. When I was working toward my bachelor’s degree, I was married and raising small children, while also working part-time. Progress was slow, but 11 years later, I had a degree. That success also led me to earning an MBA a decade later…(Thankfully, it didn’t take a decade to earn that one!) The habits-quotespoint is, those achievements were the accumulation of MANY mundane steps, but by sticking with them and keeping my eye on the finish line, I got there. This same principle can be applied to so many things. As Woody Allen said, “80% of success is showing up.”

How about you, KitKat? What does your “platform” look like? (And no, I’m not talking about shoes…)

KitKat Weighs in…

It’s KitKat, remember me? I have been a bit quiet as I adjust to a new job while balancing my normal chaotic family schedule. But, there is nothing like a political debate to pull me out of the shadows. Having divorced parents on two opposite sides of the spectrum, I have grown up listening to opinions shared with extreme passion. I learned that it is ok to express your beliefs, and a good family debate is sometimes a great way to firm up your own convictions and even counts as quality family time.

Though I found Stormy’s expressed beliefs undebatable (including the madman), I thought I better add mine to the ballot. Who knows, she may ask me to be her running mate!

Share the real things – I love seeing everyone’s photos documenting all the bests, but don’t forget to share the other real things too. Friends, acquaintances and even random bloggers, who have opened up or provided self-deprecating humor about struggles with kids, marriage, or other life issues have helped me in ways they will never know. Hey, it is nice to learn you’re not a freak with weird thoughts and emotions that no one else could imagine. It’s not about a bitch sessions. It’s just about being real. Otherwise, we all would just see the snippets from Facebook and wonder why our lives aren’t always made up of countless shiny moments like everyone else.

IMG_5681
KitKat shakes things up by taking her fear of flying on a seaplane in Seattle

Shake things up – Try new things, learn new skills, meet new people and make different mistakes. Sometimes my risks are bigger like quitting a safe corporate job to join a start up and sometimes it is as simple as changing my hair color. Shaking things up keeps me awake. “To dare is to lose one’s footing momentarily. To not dare is to lose oneself.” – Soren Kierkegaard

Keep moving – Sometimes you just can’t fix a rough day or bad situation, but just physically moving will help get you out of the wallow of self-pity. Twisting your body into different yoga poses. Taking a walk outside. Or my personal favorite: turning on music and dancing. No, it may not fix anything,  but it provides a momentary escape from a really crappy day.

(This may sound like a contradiction to Stormy’s “end it” advice but think of it as an alternative to those of us who don’t have the luxury to go to bed early. Stormy and I support all lifestyles.)

Your life isn’t all your own – There are many great readings on how to be happy and do what is right for you. I devour these when I see the posts. Who doesn’t want to grow old knowing they were fulfilled in every way? But the real truth is life isn’t all about you. There are friends, family, kids and even strangers who also count. Sometimes you have to make sacrifices or do things for others that may mean giving up some more selfish choices. Your life is part of a community. People who are there to share in the highs, and pick you up from the lows. Your peeps, those you know or will know, are part of your life and decisions. And that is ok—you need them!

IMG_5593
You never know what kind of a fairy you may encounter!

Let children believe – Soon enough we learn fairy tales don’t always have happy endings. But let them discover that themselves. So at my house Santa and the Easter Bunny are real, or at least nothing any of us question aloud, so they will keep visiting. And of course I was a fairy in my 20s with all kinds of mystical stories to share with my daughter whose deepest wish is to also become one. And, I am going to let my son think he has a solid career plan, being that if he doesn’t get recruited by the NHL or MBL, he came up with the fallback job of  being a pro-sports lawyer. No reason to crush his dreams with realistic expectations at 13. Plus, it is fun to hear all the things he is going to buy me when he is rich and famous. Let children believe in the whatever after. I find that going along with their imaginations lets me believe a bit in magic and wish bigger too.

Words count – Words hurt, much more than sticks and stones. The things we are told stick with us. Some of the comments told to us out of anger or disappointment, haunt us later. You may be surprised how much someone held on to words you forgot you spoke. It is ok to be honest and tell people the truth. I advocate for not being passive-aggressive and as I mentioned above, being real. The hard part is to remember to also go back and share when you don’t feel that way anymore or when they have made amends. Words also have power to heal. (This is something I am trying to remember in dealing with my own kids—especially navigating around a temperamental pre-teen.)

Arguing is ok – Simply put, if I am not willing to argue with you, that’s when you know something is wrong. There is passion in caring.

Embrace everything that has shaped you – Everyone has made some choices that they may go about differently given the chance. But it’s not just “right” choices that form the better you. Sometimes it’s the other paths where you learn the most. I may not want my children making some of the choices I did, but I hope they safely make it through some unchartered journeys. Instead of living in a cloud of regret, remember the things gained or experiences had. The skeletons in your closet are also your treasure chest of memories and learnings. For example, the R-rated job I took up in college; sorry Mom and Dad but I am still glad I was dumb enough to make that bad choice. Love all of your story—it is what makes you interesting.

Some things are best left alone – As much as I stand for trying new things and always improving, sometimes we need to realize when we already have something good and just leave it alone. For example, take Swedish Fish Oreos. How could someone take one of the best candies, which I will eat until my teeth actually hurt, and combine it with a favorite classic childhood cookie. You took two greats and transformed it into an awful. Another example is taking a yummy piece of bread and then dipping it in a bowl of creamy tomato bisque. Now you just created wet, and pinkish, bread—gag! (I loved those hot lunch trays in elementary school that kept my foods separate.) Basically, don’t ruin a good thing when you have it.

What do you say, Stormy? Should we throw our hats in the ring? The way most Americans feel about their choices this year, we may actually stand a chance. 🙂

*This list was inspired by another blogger whose work Stormy admires. See the original post here.

Chasing rainbows

On By StormyIn Attitude, Fashion/beauty, Hobbies, Home, Marriage, Random, Relationships, SummerLeave a comment

I know what some of you are thinking… “I started reading this blog because Stormy and KitKat promised they are more messed up than me. But now all I’m getting are introspective posts on world politics, brain surgery and death. I want to know how is Stormy handling being 50? What about the move? Is she still crazy?”

So for those of you looking for some shallow reading—the beach blanket chick-lit version of this blog—Stormy is happy to oblige. It’s the middle of summer and I’m exhibiting my usual, “Wait! Slow down!” despair as I contemplate the dwindling number of free weekends in which to schedule my summer must-dos. For example, I’ve had my boat for four summers now, and have yet to get KitKat and family out on it!

popeye-I-am-what-I-amI’m also in a weird mental place right now. There is so much that’s going well in my life, but for some reason I’m feeling aimless and dissatisfied. Do I need a new job? Do I need a new hobby? Do I need to just quit bitchin’ and appreciate my blessings (my money is on the latter). I need to figure out what the next phase of my life looks like.

It turns out that being 50 is okay (well, I’m actually 51 now). I still can’t believe I’m in this decade, but I just try not to think about it (denial is my friend) and keep doing what I’ve always been doing and wearing whatever I like. I believe in being comfortable and true to myself, yet I don’t want to get a lecture from my girls (“Mom, what are you wearing?… Really?”) so I try to temper my need for self-expression with a little common sense. I trust that they’ll tell me if I push the limits too far.

mature?I had an epic revelation the other day: I looked at my husband and said, “Woah. I just realized that I’m as mature as I’ll ever be. I probably am not going to mature any more than I am!” He laughed, but I pointed out the irrefutable truth of the situation: By the time a person turns 51, that’s pretty much it. That individual isn’t going to get a whole lot more mature. For some reason, I found that oddly comforting…knowing I’ve reached an age where I no longer have to worry about trying to be older or more sophisticated or younger or hipper. I am what I am (a favorite saying of both God and Popeye). In other words, this is it, folks. Move along, there’s nothing more to see here.

On a brighter note, Oskar and I are celebrating the anniversary of our move into our downsized digs. This was a monumental effort last year—I still get exhausted just thinking about it. On the other hand. I L-O-V-E LOVE our new home. It’s the perfect size. It’s in a perfect location. I love having a new space to decorate. I also love having very little maintenance work. And although I had a tough transition in seeing my little chickies fly the nest, now that we’re out of their childhood home, I love living the life of an empty nester. It’s sort of like being newlyweds again except now we have more time (we were only married for a little over a year when I got pregnant with my oldest) and more money.

shark5Which brings me to the last update—you’ve already read about my husband’s successful surgery, so the big question on everyone’s mind (well maybe not, but it’s on my mind, at least) is what’s next? I wish I knew. I know myself well enough by now that I realize I always need some type of project to keep me focused and happy, and right now I don’t really have that and I feel like I’m floundering as a result. It’s an uncomfortable feeling, and I’ll keep searching for that “thing” that will make me feel grounded. I’m not sure if it will be work, school, a hobby or volunteer work, but I’ve always lived my life like some species of shark—that is, I need to keep moving or I know I’ll drown—so I’ll keep chasing rainbows until I find that emotional pot of gold. I haven’t figured out the answers yet (another example of “easier said than done”), but as soon as I do, you can be sure I’ll let you know!

Test driving the new brain

On By StormyIn Attitude, Health/fitness, Marriage, Relationships2 Comments

In my last post, I explained the process my husband was undergoing for brain surgery. I’m happy to report that the results are better than either of us were expecting. I’ve described his off and on periods before, but this video shows his results better than I can explain. The “task” is to go back and forth between two pieces of tape as fast as he can. In the first snippet, he is completely “off,” no DBS, no meds. In the second, both are working together.

The beauty of his DBS device is—even when his meds are “off”—he still has about 70-75% mobility, compared to about 20% without the device (see the chart below). As you might imagine, this has been life-changing. (Editor’s note: That’s not a word I use lightly—I once wrote an article about getting braces as an adult and the magazine publisher wanted to edit it to have me say it was life-changing but I refused to put straighter teeth in that category. My teeth weren’t horrible to begin with and it was really more of a vanity thing.)

For the first couple of days we were stunned—we kept waiting for Oskar to go “off” to the extent he had previously on previous occasions and it never happened. Well, actually it did one evening…sort of. When we were out for dinner later the following weekend, Oskar felt the familiar slowness associated with being truly “off.” We were both a bit depressed about it—thinking the results had been too good to be true—only to discover when we got to our car that he had accidentally shut off the device. He pressed the on button and surged back to mobility. It was truly a miracle.

Oskar and I realized over the next week or so that many things that had been difficult or impossible for him to do while “off” were, once again, on the table…such as:

  • Driving
  • Cooking
  • Going to Target (invariably, if Oskar tried to go to Target while his meds were on, they’d crash on him just as he was needing to maneuver the checkout line/payment process)
  • Visiting his deceased mom’s elderly partner, Harold (see driving, above)
  • Riding a bike
  • Hiking
  • Standing while waiting for a table at a restaurant
  • Taking walks around the park
  • Sight-seeing

Actually, that last one was my realization when I thought, “What better way to test-drive the new brain than by going on vacation?” We had had a grueling, busy winter and were ready for some fun in the sun, so we booked a spontaneous trip to California to visit some friends and Oskar’s little sister—and to see how much of a contribution his DBS device would make to our vacation.

DBS_chart

The vacation was enlightening. The first night, we stayed with my high-school friend Dot and her husband. We had a fun afternoon and dinner out, catching up on Dot’s new hobbies (painting and pottery—which reminded me that I have to make time for more art in my own life) and her husband’s acting career.

The next day, after going out for breakfast, Dot was chained to her home waiting on an important delivery, so I decided to take Oskar on the hike we had done with Dot and my girls on our last visit, in a park near her house. I remembered the trail as being fairly long, but not too strenuous, and it had beautiful views of the LA area. Still, it was the type of hike that Oskar would have had problems with in the past—so I wanted to see if the “New Oskar” could handle it. We found the trailhead and headed up the path. The trail went up…and up…and up… I kept asking him, “Are you okay?” “How are you doing?” “Do you need to rest?” and each time he said, “No, I’m fine…” And here’s the thing: He WAS fine.

The next day, we went to meet Oskar’s little sister and her husband. They’re both scientists working for a biotech company and have a lovely home in Thousand Oaks. We had dinner at an interesting outside restaurant in the Santa Monica mountains. The next morning, we sat out in the backyard contemplating how to spend the day. (Interesting observation: Oskar’s sister and husband have a lovely backyard, complete with swimming pool, but don’t spend much time in it. “Do you entertain out here?” I asked, thinking of my love for outdoor parties. “No, not really” was the reply. It was a clear geographical difference—in Minnesota, it’s nearly mandatory that if it’s nice, you’re outside. No debates. We don’t have a lot of nice, warm weather, so we cherish every sunny day, and nobody knows how to celebrate the beauty of summer like a Minnesotan. California, on the other hand, sees so many nice days that its residents TAKE IT FOR GRANTED. This is nearly an unforgiveable sin, but our hosts did a good job of indulging our craving for Vitamin D.)

Oysters on the beach
Gorgeous roses in the vineyards
Stormy feeling carefree

We grabbed a bottle of champagne and headed to an oyster food truck that parks along the ocean in Ventura. We ordered a variety of oysters—raw, fried, baked—and had a picnic on the beach. It was awesome. Oddly, my sister-in-law had gone running on the beach past the food truck many times, but had never stopped for oysters. So our visit prompted her and her husband to try it out. How many great experiences do we all overlook in our own hometowns, and how many cool things might we discover if we looked at our city through the eyes of a tourist?

Afterward, we went to a microbrewery and continued our day of indulgence. Later, we went up the coast and met an old college friend of Oskar’s at another microbrewery. (Do you see a theme here?)

IMG_3109The next few days were spent in the Santa Barbara wine country and one day consisted of a long day trip up to Big Sur and Carmel. All along our trip, I was evaluating how Oskar was handling things. He was able to drive more than he normally would (although I drove most of the PCH, he took the wheel for most of the route home).

On our last full day, we visited a number of wineries. We noticed that for the first time since Oskar’s DBS device had been switched on, he was experiencing some noticeable “off-time.” This tempered our “New Brain—New Life!” outlook a bit, and we were both a little quiet and reflective. What seemed too good to be true apparently was.

We returned home and back in his everyday environment, Oskar quickly rebounded to his new-and-improved self. We decided that Oskar’s off periods while on vacation were caused by a little too much beer and wine, combined with him taking a more lax approach to his medication schedule.

The vacation had mixed results… We learned that Oskar’s surgical success didn’t mean he was cured, but we also discovered that it was possible to turn back time to a point where Parkinson’s didn’t rule our lives. And we have to admit, we’re pretty excited about that!

 

 

Well, it’s not rocket science…

On By StormyIn Attitude, Family, Health/fitness, Marriage, Relationships5 Comments

Right now, I’m sitting in a hospital waiting room as my husband has brain surgery. The road here wasn’t short. When he was diagnosed with Parkinson’s 13 years ago, we investigated treatments but found that there weren’t many options. The gold standard for Parkinson’s Disease is a drug called carbidopa/levodopa that Oskar has been taking for a number of years. As I’ve written before, it’s not a predictable treatment—sometimes it works, sometimes it doesn’t. Moreover, the longer one takes carbidopa/levodopa, the more likely one is to experience dyskinesia: Unintended movements caused by a surplus of dopamine in the system. These can be annoying (like when Oskar dropped my favorite mug) or potentially dangerous (for example, while driving).

For more advanced Parkinson’s patients, there is one surgical option—Deep Brain Stimulation (DBS)—but it isn’t a cure and the procedure can only be done once, so it’s usually not recommended until the disease is more advanced.

In recent years, Oskar started to reach a dosage level that brought on the dyskinesia. While the excess movements didn’t bother either of us much initially, it was becoming quite pronounced and, when he considered that along with the increasing frequency of “off” times, Oskar decided it was time to explore DBS.

Oskar volunteered to participate in a clinical study for a new device and underwent a series of tests to see if he was a good candidate for the surgery.

One of his consults required him to go off his medication overnight so that he was completely “off” while being evaluated. Then, they had him run through a series of motor tests to record his movements on video and time how long it took him to perform certain tasks. Then they let Oskar take his medication and he re-performed all of the tests with the carbidopa/levodopa in his system.

Now, I have seen my husband in both his on and off states hundreds of times, but the truth is I don’t pay attention to him much when he’s off. Oskar generally doesn’t like me to help him when his meds are off and it’s frustrating to watch him struggle and a bit depressing to see him sit there motionless. Truth be told, he’s not the best company when he’s off, so I usually go do other things while he waits for his meds to come back “on.” However, during the medical evaluation, I watched intently as he went through all of his motor tests both “off” and “on.” The difference was amazing. When he was off, he had a pronounced tremor, a blank expression, a softer voice, and very slow movements. When his meds came back on, you could see the relief flood his face. The tremor was replaced with dyskinesia, but he was more relaxed and able to do most of the motor tests with ease and greater speed. But throughout both on and off states, he kept his sense of humor and grace and reminded me once again what a classy guy he is.

The dramatic change in his motor skills was good news, though, because how well a person responds to the medication is an indicator of how they will respond to the surgical procedure.

brain surgeryOskar’s first surgery (on the left hemisphere of the brain) took 6 and a half hours. This was time he spent mostly awake with a halo screwed into his head, while the surgeon drilled a dime-sized hole in his skull and placed an electrode into his brain, looking for the optimal spot. The surgical team would test the location by having Oskar move his hand and leg and listen for the sound of the electrical impulses going from the brain to the muscle—basically listening for static. It took them five “pokes” to find the right location, but his surgeon was pleased by the results once they hooked him up to the transmitter because Oskar responded to very low levels of stimulus.

Before the procedure, family and friends offered their support—Do you need anything? Do you want someone to sit with you in the waiting room?—and I was actually a little confused by it. After all, this was a voluntary procedure expected to have a good outcome; it wasn’t an inoperable tumor or something… But as the hours wore on I started to get concerned; I hadn’t expected such a long time in surgery. My default coping method is denial, but that strategy requires one to keep busy so the real concerns don’t creep in. And that’s hard to do when you’re sitting in a hospital waiting room, alone, with a spotty wi-fi connection. After the successful completion of surgery number 1, I was grateful for KitKat’s company as I downloaded the day’s events to her over a glass of wine that evening.

Writing this in real-time, Oskar just completed his second surgery (for the right hemisphere) last week. This time, they were able to place the electrode on the first “poke,” although they took two more passes at it to ensure they had the proper placement. Although both procedures were somewhat exhausting and wore him out more than he was expecting, we were glad to get past them. All jokes aside, it was brain surgery, after all. We’re anxious to get through his final surgery later this week (implanting the transmitter in his chest) to see how much of an improvement he gains when they switch everything on later in March. The large scars on his head seem like a small price to pay for the increased mobility he hopes to gain.

It's a good thing scars on guys are "rugged and sexy"...
It’s good that a guy’s scars are “rugged and sexy”…

And there’s nothing like spending time in a hospital to remind you how fortunate you are. During these procedures, we both crossed paths with a number of people facing bigger challenges than us, and those encounters served as a humbling reminder of how lucky we actually are. We’re very optimistic about the outcome, but are trying to temper our hopefulness with reasonable expectations.

I don’t know what the future holds in terms of Oskar’s DBS results or how it might change our future, but I’m curious to find out. Yet, one thing Parkinson’s has taught me is to take it one day at a time—so you’ll find out when I do…a few months from now.

Getting to “Sold”

On By StormyIn Attitude, Getting older, Home, Marriage1 Comment

Dear Readers, It’s been a while since you’ve heard from me, but I don’t want you to think I’ve taken this absence lightly. We know our legions of followers depend on our dysfunctional tales to help them feel good about themselves, and KitKat and I are loath to disappoint. I want to take this moment to thank you for indulging me in my prolonged absence and assure you that the dry spell is nearly over. I hope that when you read what I’ve been up to, you can forgive me my negligence… And now, where has Stormy been the last three months?

Moving prep can kill you.
Moving prep can kill you.

Well, last year I mentioned that my husband and I were going to downsize. Part of this is just due to entering a new phase of our lives—our kids are grown and starting their own lives. At the same time, it’s also a concession to my husband’s Parkinson’s Disease. Twelve years into this disease, certain things have become difficult—and although he’s still able to do quite a bit when his meds are working, we’d both rather he didn’t have to spend his “quality time” doing routine household chores and yard work. After the holidays, we consulted with a realtor friend of my brother’s and decided we’d try to list our house in the spring. (In Minnesota, there’s a definite season to house-hunting and it peaks in April/May.)

Originally, I had a very pragmatic outlook to moving and told myself (and my husband) that we’d first focus on selling our house and then take our time finding the perfect new home. After all, we have a vacation condo (“urban cabin”) about 40 minutes away that we could live in temporarily if needed. Well, this strategy lasted about one week. I started thinking about the limitations involved in moving to our vacation condo—impossible for my husband to drive to his personal trainer appts., harder to see my elderly parents, farther away from other friends and relatives, longer drive to work—and decided I just wanted to get the process over with. (As I like to say, I’m fine with change—it’s changing, I can’t stand. Yet that’s the action verb that gets one to a new stage in life. It’s unavoidable—like death and taxes.)

I think that the power is the principle. The principle of moving forward, as though you have the confidence to move forward, eventually gives you confidence when you look back and see what you’ve done.

– Robert Downey, Jr.

It’s also a fact that I tend to become a little obsessed over things like this—as my husband could attest—and so I started poring over online listings looking for our new home. This process was both exciting and frustrating. After so many years in the same house, it was exhilarating to think, “I can have a big walk-in closet!” “I can have a big master bathroom!” But it was also discouraging to realize that my husband’s illness meant we couldn’t pursue some properties—like the cool old brownstone in St. Paul with tons of character that required the owners to walk a long flight of stairs to reach the house from the detached garage out back (a perilous journey in the winter for someone whose meds aren’t working).

In mid-March we went to an open house for a property that showed promise. It was in one of our favorite areas of town and, although it wasn’t perfect, it “ticked enough of the boxes” to warrant serious consideration. Unfortunately, there were two major problems for us. 1) They didn’t allow dogs and 2) We were about to leave for a week long trip for Mexico. I decided I would just relax, enjoy our vacation fully and reassess the condo situation once we returned (if the unit had not been sold by that time).

Ziplines in the jungle were a fun distraction from house-hunting.
Ziplines in the jungle were a fun distraction from house-hunting.

However, during our vacation I found myself keeping one eye on the listing, and during the week a couple of additional properties popped up that were worth looking into as well. I was starting to feel more confident that we would ultimately find something that would work for us.

The morning after our vacation, I emailed our realtor three properties that we wanted to see. We wanted to go back to “the one that ticked the boxes” for a closer look, and there were two new places we wanted to check out. He responded that the two new ones were already off the market, but he’d scheduled a return visit to the condo we had seen before vacation. It seemed like a sign.

Blossom and Pixie in younger days
Blossom and Pixie in younger days

When we went back the second time, we took a closer look at the place and started talking about how we would redecorate, where we would put furniture and what we would do to make the condo “ours”…We were both able to envision ourselves living there fairly easily, but we still had the issue of our dog. I asked my youngest, college-age Blossom, whether she’d consider taking our elderly Westie. (In Pixie’s eyes, Blossom has always been her one true master.) And she graciously agreed to help us out her by taking on custody of her childhood companion. After that was settled, we made an offer on the condo that was under the asking price and were thrilled when the buyers accepted it quickly. One half of our journey was complete!

However, there was still the small detail of selling our house. So we dove headfirst into the arduous process of getting our house ready to list. This was no minor task. After 25 years, there were a myriad of small repairs needed: painting, pintucking our bricks, replacing fixtures and outlets, staining woodwork. Fixing the broken windows, quite literally. And cleaning, cleaning and more cleaning. (Our realtor recommended everything be “surgically clean,” which is a notch or two higher than my personal bar: “the illusion of clean.”)

Our realtor always lists on Fridays and holds an open house the first weekend—part of a strategy to generate interest quickly—so we set a personal deadline for listing our house. A week before our self-imposed deadline, we knew we wouldn’t make it. My ADD was kicking in, so if I had to go into a new room to find a paintbrush or tape, I’d be distracted by 10 other things that needed doing. This meant there were half-packed boxes and half-finished projects EVERYWHERE and the clutter was stressing me out, making it even harder to focus. There was still way too much to do. Moreover, we were both incredibly tired, and I hadn’t been feeling well either—but since we now had a closing date set for our new place, we were determined to push through and finish.

The Lean Mean Cleaning Machine (Will work for food!)
The Lean Mean Cleaning Machine (Will work for food!)

I sent a “HELP!” text to my two sisters who live closest and they both volunteered their services immediately. I’ve mentioned before that I have a challenging relationship with my mom—but my sisters make up for it in love and support. I know that I can call on them for anything and they’ll be there. Because most of them were already teenagers when I was born, they did a lot of the heavy lifting involved in raising me when I was little and served as great sounding boards when I was a teen/young adult myself. After buying my sisters a nice breakfast, I proceeded to work them like slaves the rest of the day. But by the end of the weekend, we finally turned a corner and I could see that we would in fact make our deadline. We were ecstatic to actually see the finish line ahead.

First thing Friday morning, I searched the Internet for our listing and there it was: For Sale. The professionally taken photos of the surgically clean rooms—completely devoid of any family photos or usual signs of life (like ironing boards and dirty laundry)—looked nothing to me like the house I had lived in all of these years. But it looked good, nonetheless. So much so that text messages for showing requests arrived all day and over the course of the first two days, there were about eight private showings in addition to the open house. By Sunday morning we had FIVE offers—the best one a full $20k over our asking price. Even better, when we received the paperwork for the offer, we discovered that the buyer was the son of one of my husband’s college buddies. It was the icing on the cake to know that our house was going to a young couple, just starting out, that seem to love it as much as we do.

This impending move has been weighing heavily on my mind for the last five years or longer. To have everything turn out better than I expected was a much-needed reminder that in this dog-eat-dog world, sometimes life throws you a bone and it’s best to just wag your tail and savor the sweet taste of success. 😉

An unexpected Christmas Present

On By StormyIn Attitude, Entertaining/leisure, Getting older, Marriage, Relationships1 Comment

The other day, I was reading Facebook and my daughter Lucky posted a video clip from the musical “Scrooge”—a holiday favorite in our house. Along with it, she posed this tongue-in-cheek challenge to herself:

Personal goal: To reach (Ghost of) Christmas Present levels of combining a jovial and uplifting attitude with being generally insulting.

Although I don’t aspire to insulting anyone, striving toward a “jovial and uplifting attitude” sounded like a fine idea.

Last year, I wrote about the lessons I learned from the Ghost of Christmas Past, but this year Lucky’s post made me think about the lessons I could learn from the Ghost of Christmas Present.

If there’s one thing living with my husband’s Parkinson’s has taught me, it’s the importance of living in the moment, but I’m notoriously bad at this. I’m constantly looking into my future through a negative lens. I’ve had a really tough year at work and was so busy I couldn’t take much vacation time. Since we have a use-it-or-lose-it policy, I found myself with 16 consecutive days off and decided to use this time to really live in the present and enjoy both my family and the holidays.

On my first day of “vacation,” we had plans with my sister and her husband to see one of my husband’s former co-workers whose band does an annual holiday concert. We had seen them years before, so I knew they were a good band—but I knew the concert itself would be challenging for my husband who has trouble standing for long periods or navigating through crowds when his meds aren’t working. But he was game to go, so we bought tickets and I hoped for the best.

We got to the rented hall, turned in our tickets, had our hands stamped and were given a red Solo cup for pop or keg beer. My brother-in-law said it reminded him of a college kegger, and the atmosphere was equally festive. There were ugly Christmas sweaters, sequins, Santa hats and light-up jewelry. The security staff was very friendly, and everyone was filled with holiday spirit—as well as spirits of another kind (in addition to the beer and pop, people could also bring in their beverage of choice). However, all of the tables and chairs were already full of partygoers who had arrived early enough to grab a space.

PopbangWith the first song, the dance floor filled. My husband promptly (and predictably) announced that his meds were cutting out on him and he needed to find a wall to lean against. This was the dark cloud hanging over the evening and I felt a bit defeated—here was another potentially fun evening that was going to be ruined by Parkinson’s. Luckily, we found a space among the empty benches lining the walls of the hall and we set up our base there. With a raised ledge that was wide enough to sit on, it was ideal. It was possible to sit comfortably and still see the band and the dance floor. My sister and her husband headed to the dance floor, but since dancing is nearly impossible for my spouse, I was resigned to sitting it out.

However, the band was just too good for me to remain sullen, and the various “spirits” were taking effect. My feet were tapping, my body was swaying and the next thing I knew, my brother-in-law had dragged me out to the dance floor. From that point on I embraced the present by channeling my past. I partied like my 21-year-old self the rest of the night. I danced with my brother-in-law, I danced with my sister and I even managed a slow dance to “our song” with my husband. We stayed til the very end of the party and then grabbed a bite to eat afterward.

By deciding to accept the gift of Christmas Present, I had a surprisingly good time. But how many potentially fun moments had I missed by worrying about the future instead of living in the present? This is one Christmas lesson I need to remember all year long: If I like life, life will like me.

Looking for a happy pill

On By KitKatIn Attitude, Children, Marriage, Men, RelationshipsLeave a comment

I am sad. Why? No particular reason. At least none that I can directly point to. I am not even sure if “sad” is the right word. Wistful, blue, blah, wishful, lacking … all I know is don’t call it mad. That is what had me walking out of the house the other night.

I can’t say what set me off. Perhaps my hope, or need, for a fun family dinner to dispel the dark mood cloud I felt settling in. A dinner that instead had my son angrily sticking up for, or throwing a tantrum about, Adrian Peterson. “It’s just what they do in Texas,” (said the boy who may have had four spanks/light swats EVER which left me as the only one hurt, due to my guilt over losing my temper). His only motivation was 11-year -old warped thinking that if he argued his point, miraculously the Vikings would have their star back and win again. Or maybe it was my daughter, who left the table ten times to look at her wiggly tooth (her first one). And then there was my husband who just didn’t pay attention to any of us. I wanted laughter, smiles and talk – a distraction from my looming mood. Basically, a pretend TV family. That was not happening.

Click to watch my version of fun family dinner
Click to watch my TV version of family dinnerblack-play-button

I was craving having a feeling – and not the kind of feelings I have been having lately.

I’ve been busy worrying about family members: Breast cancer, undiagnosed but life-affecting illnesses, and a liver laceration (of a child who might as well be family – our kids call each other cousins).

I have also been feeling stressed: busy working at a crazy pace with insane RFP responses added to my already over-packed job (and they’re not a marketing favorite), branding and marketing a friend’s new hair salon, and exploring a little side business idea.

Add on to that, dealing with raising a middle schooler and his Jekyll and Hyde emotions.

Maybe my need for the “right” feeling was brought to the surface from the heartbreaking tragedy of a school mom who died in her sleep a few days before. Maybe that is what kicked up the dust, woke me up in the midst of being lost in the hecticness, and made me want to feel something special. Or, perhaps it was just plain and simple craziness. Or it could be my hormones. (I have hit the age where I can blame them for everything). All I know is I needed to laugh. I needed to feel pure joy. I needed to enjoy. I was needing one of those moments of bliss like girls’ night at the cabin, sisters drinking wine on a Sunday, or dancing would give me. I’d had a taste of it recently – a couple of hours with my stepmom and sister just laughing in the kitchen together. But I needed more of that silly stuff that makes the rest of it all worthwhile.

With dinner not going as planned, and my family not giving me what I needed (admittedly it was a losing battle for them before it started), I got distant. Annoyed. Bummed. Resentful. I can’t tell you exactly where it escalated, but basically the words “I can’t do anything without you getting mad. Nothing I do is right,” were the final words muttered to me that set me off. I stood up and left the house without a word.

I walked and walked. I tried to sort through what was wrong. I just knew I was missing something. I stopped and had ice cream. (That helped a little – simple pleasures). Then I walked some more. My head was reeling with how to fix it.

Nothing came and two hours later I went back. My daughter was still wiggling her tooth in a mirror. The guys were each on a couch (squishing my pillows!) and I walked upstairs without saying a word and went to bed. My drama basically unnoticed by anyone else.

Nothing like starting a day a few bucks richer
Nothing like starting a day a few bucks richer

It’s a new day – starting with the announcement of a missing tooth. “This is such an exciting day!” squealed my six year old. Decidedly a new attitude was needed from me too. So along with my Daily Love dosage, I added on another cheesy self-love prescription and decided to take the advice to write three things I am thankful for today.

  1. I am thankful for the smile from my beautiful daughter with her first tooth missing.
  2. I am thankful for reading that my son did notice I was upset and texted “you ok? coming home? love you.”
  3. I am thankful for all of the special people who have made me smile and laugh in so many different and wonderful ways, that I miss it when I am down.

A moment of bliss in NY with my special people
A moment of bliss in NY with a couple of my special people

Damn, this stuff works. I am smiling at the flood of fabulous memories. I found a natural happy pill. And I’m not crazy – I just like to smile.

When the going gets tough…

On By StormyIn Attitude, Faith, Health/fitness, Marriage, Random, Relationships1 Comment

April is Parkinson’s Awareness Month and this is a disease that impacts me daily. About a decade ago, my husband was diagnosed with PD at the age of 44. This hit us out of the blue—there was no family history to foreshadow the condition and we were attributing his symptoms to something very mundane—a pinched nerve, carpal tunnel syndrome, etc.

I could write a lot about my husband and how terrifically he copes with the hand he’s been dealt… The man never complains or feels sorry for himself whereas I’m pretty sure that, in his shoes, I’d be the hostess of a 10-year pity party.

There are lots of nuances to his symptoms, but the upshot is this: His day is ruled by his medications and whether or not they are working. We sometimes refer to it as a Jekyll and Hyde existence but that doesn’t seem quite appropriate—while it’s “good” when his meds are “on” and “bad” when his meds are “off,” the whole Jekyll/Hyde analogy makes it sound like he turns evil, when he actually handles his off times with as much grace as any human being could muster.

Recently, he came up with another analogy—when his meds are off, he’s wooden and can’t move and when they are on he becomes “a real boy.” This seems more appropriate, and the transformation of how my husband comes to life when his medication kicks in is not unlike Pinocchio.

But I won’t presume to tell his story and instead will share my own. This is what I’ve learned having Parkinson’s “by proxy”…

1) There isn’t much I can control. I have a control-freak nature. And while having children was my first lesson in learning the limits of what I can control, dealing with my husband’s Parkinson’s is like being in graduate school. I find myself reciting the Serenity Prayer a lot. It’s a good prayer. I’m hoping one of these days it will sink in.

“I know God will not give me anything I can’t handle. I just wish that He didn’t trust me so much.”       –Mother Teresa

2) There’s a method to His madness. While I think the adage, “God doesn’t give you more than you can handle” has some truth in it, I also think He likes pushing you right up against your limits at times. For example, I’m not the stop-and-smell-the-roses type. For a Midwesterner, I’ve got a rather intense East Coast approach to life and Parkinson’s is a condition that could try the patience of the most easy-going Southerner.

When I would think of my husband or myself dealing with illness, I imagined being struck with a more common condition, like cancer. This is a horrible, awful thing to deal with—no doubt about it. However, in many cases you can “battle” cancer, and if you’re lucky, you can win. Trust me, I’m not wishing my husband had cancer instead of Parkinson’s, but I sometimes think that fighting cancer would be more in line with my temperament. I like to think I would bravely don my armor and be at his side to help slay the dragons. But Parkinson’s isn’t a dragon—it’s the mosquito in the room whose buzzing keeps you up all night and slowly drives you insane.

David Byrne, Cowboy Mambo

There’s a David Byrne song with some slightly blasphemous lyrics that captures my perspective on this, “Green grass grows around the backyard shithouse. And that is where the sweetest flowers bloom. We are flowers growin’ in God’s garden, and that is why he spreads the shit around.”

Now, I don’t believe in a spiteful God, but I do think He is aware that my Serenity Garden is a bit overrun with weeds–and that my husband’s illness is part of a larger plan intended to help fertilize the flowers.

3) God provides help where you least expect it. Despite the negative lessons I’ve learned about myself, I’ve also learned that I’m not completely on my own. While testing me big time on the patience front, God has also sent some unlikely angels to support me through this process. People who accept me despite the aforementioned shortcomings. I’m very thankful for these people in my life.

Diamond or basketcase? The jury is still out...
Diamond or basketcase? The jury is still out…

4) We all need to cut each other some slack. There’s one aspect of my lack of patience that I’ll accept, and that is my growing intolerance of hatred and judgment and negativity. Life can be tough. But most of us are doing the best we can, and we all need to remember that. When it comes to disability awareness, I’m probably on the “more enlightened” end of the spectrum having worked for two organizations serving people with disabilities and consequently spending a lot of time around people with various conditions. Despite this experience, I cringe when I think about past incidents where I might have thought someone’s slowness was just disregard for other people’s time or assumed that someone’s lack of balance was the result of too many drinks. I know there are times when my husband’s symptoms are probably misinterpreted and that if others knew the true cause they would be more tolerant and considerate as well.

5) It’s anybody’s guess. Parkinson’s is a very individual disease. While there’s a typical progression to the illness, not everyone experiences their symptoms the same way. Some people’s illness progresses very quickly, others more slowly. I have no idea exactly what’s in store for my future–but then again, does anybody? I also have no idea how well I’ll continue to cope with it all. My only hope is that I continue to recognize the blessings in my life and appreciate those who are helping my husband and me along this journey.

How this came about: KitKat’s story

On By KitKatIn Marriage, Men, Relationships, Work/careers5 Comments

I woke up one day as a grown up. No one tells you how to be that. Sometimes I excel at it and other times I am tripping through it.

Looking at myself from the outside, I see a woman busy raising two young kids, enjoying great family and friends, and building a demanding but good career. Shouldn’t that be enough? Isn’t it all I ever wanted? If I have it all, why do I fantasize about giving it all up and running away to sell toe rings on a beach? Maybe I need to add another distraction to my already over-scheduled life?

Usually a glass of wine and good girlfriends get me over the hump. Lately, the more I talk with others, the more I find out I’m not alone in my contradictions and craziness. Take Stormy for example, she was my professional mentor, the one who always provided words of wisdom through my ups and downs, gave sound advice on marriage, parenting, and career choices. Yep, the one who had it all together! So as our friendship grew over the years and we became peers, I was surprised (and secretly thrilled) to discover not even she had it all figured out and put together.

Since talking and sharing is what has helped us get through some major and minor internal struggles, we’re hoping this blog will allow other women to know they aren’t crazy – or if they are, well at least realize they are in good company. I also am hoping that by writing down and examining all the contradictions running though my head, I will finally discover that perfect balance between adding new excitement and being content with what’s already there. I have a feeling that this is easier said than done.