One woman’s utopia: A Barbieland society with ample pickleball courts

When I first heard about The Barbie Movie, I wasn’t that interested—a movie about Barbie dolls? Unlike KitKat, who grew up with sisters and played with Barbies a lot, I never even had an actual Barbie doll…My sisters were 9-17 years older; so if they had any Barbies, they would have resembled “weird Barbie” by the time I came along. I envied my friends who had a whole cache of Barbies and a case for her clothes. To have the Corvette or Dream House would have been a luxury I couldn’t even envision. As the eighth child surrounded by boys, rusty Tonka Trucks were in good supply, but not many dolls—let alone fashion dolls.

At that point in my tender youth, when everyone was still courting skin cancer in search of The Savage Tan, Malibu Barbie was It. I desperately wanted one, but the closest I ever got was Malibu P.J. (Google it: PJ was one of Barbie’s transitory friends, although she was never mentioned in the movie.) This sums up my youth in a nutshell. If something was cool or popular, I probably didn’t have that thing. But I usually, eventually, acquired a less popular, less expensive version of The Popular Thing instead. Sigh. What a tragic childhood. I’m sure this has left deep scars…but I think it also reinforced my tendency to occasionally buck the trends, and I believe a little nonconformity is good for a person, so it all balances out… 

Anyway, back to our story. 

As a marketer, I was impressed with the promotion of the movie—I had never seen such a thorough marketing campaign for a movie. The number of clever cross-promotions was staggering, a true Master Class. But I still had no interest in seeing a movie about Barbie dolls. 

That is, until the reviews started rolling in. And angry MAGA types started bashing the movie. Now I was intrigued. The week it opened, I met KitKat on the pickleball court. She mentioned she had seen The Barbie Movie the night before. “I loved it!” she exclaimed. “You’ve gotta see it.” We talked a little about how it showed men’s and women’s roles (with no spoilers), and I agreed that it sounded like something I’d enjoy. 

As we were playing pickleball that day, we noticed an older guy (late 60s/early 70s perhaps?) “teaching” his friend/girlfriend/wife how to play. He stood showing her how to hold the racquet, serving ball after ball for her to hit in a rote manner, constantly “correcting her” and  never letting her actually “play.” Pickleball is not a difficult sport to learn and even our professional instructor let KitKat and me play during our first paid lesson. We felt bad for this woman.

Later that week, Oskar and I went to a matinee of Barbie. We both enjoyed the movie and thought it was thought-provoking. I told him about our pickleball observation which directly relates to one scene in the movie. Afterward, I read a few more reviews [Bill Maher: INSERT EYEROLL HERE] and my overall takeaway was that while the patriarchy is exaggerated somewhat for effect in the movie—many men think it’s GREATLY exaggerated, while other men and most women realize it’s only SLIGHTLY exaggerated. 

After I had seen the movie, KitKat and I were back on the pickleball court playing a fierce game of singles when the same aforementioned gentleman, who was on the adjacent court giving his partner another “lesson” approached us, offering a neon yellow pickleball. “You’re playing with an indoor ball,” he told us. “This is an outdoor ball. Try it, it will work better.” 

Now, Dear Readers, KitKat and I were playing with an outdoor ball. Sure, it was a different brand and a different color, but I had previously confirmed that it was an outdoor ball, and we had been playing happily and successfully with it for weeks. 

So, I told Mansplaining Pickleball Guy that the ball we were using was, in fact, an outdoor ball. He took it from me, regarded it skeptically, bounced it, then bounced his ball, and handed me both balls. “Just try this one,” he said dismissively, “I think you’ll find it’s better.” Then he walked away to continue his lesson with his friend/girlfriend/wife. KitKat and I looked at each other: “WTF was that?” We shrugged and then played one game with the new ball. Afterward, we went back to our original ball just to make a point. 

Back to life off the court… I knew my daughter Lucky would enjoy The Barbie Movie, so I invited her for a lunch date. There were so many layers to the film that I was happy to see it a second time. As predicted, she loved the movie as entertainment—Lucky was a film major in college, so she really appreciated the various techniques, set design, costuming, etc., that went into the production. (It IS a visually stunning movie, even for those of us without a film degree.)

Nobody puts Stormy in a box!

Afterward, Lucky and I were eating vegan burgers and dissecting the plot. Both my daughters are strong feminists, and Lucky’s feeling was that it was a little too soft on our patriarchal society (because the Ken’s in the film were made to be kind of lovable and goofy). Her criticism is that a lot of misogyny is really evil at its root—a calculated effort to control women. But as someone who has seen improvements over the past 50-something years, I think it’s more complex than that. I believe our society is still deeply patriarchal, but that much of it stems from tradition and ignorance vs. maliciousness. Don’t get me wrong, misogynistic maliciousness absolutely exists and is running rampant within our politics at present; still, I like to think that people always have the capacity for change and growth.

At our next PB game, I shared Lucky’s “review” with KitKat, who brought up that the Ken characters were being true to Ken’s nature as an accessory in Barbie’s life, which I thought was also an astute observation. Anyway, if you haven’t seen the movie, I’ve given away nothing of the plot, so please go see it and let me know what you think. 

Meanwhile, I want to circle back to my earlier assessment of how many men think the patriarchy is GREATLY exaggerated in the movie, while other men and most women realize it’s only SLIGHTLY exaggerated and wrap up this discussion with my analysis of Mansplaining Pickleball Guy: 

Do I believe this man had ill intent in approaching us with his wrongful perception that we were using an indoor ball to play outside? No. Do I think he was trying to be “helpful”? Yes. Did KitKat and I feel compelled to at least “try” his ball? Yes. Did I go home and re-verify that our original ball was an outdoor ball (even though I knew it was), because his surety made me doubt my own knowledge? Yes. (I am embarrassed to confess that I literally counted the 40 holes.) 

But here’s the most important question: Would Mansplaining Pickleball Guy EVER have approached two 50-something-year-old MEN playing a competitive game of singles to correct them on their ball choice? And furthermore, assume they were using an incorrect ball from a distance of 50 feet away? The answer is NEVER, EVER, EVER. And if you think otherwise, you’re lying to yourself. 

I’m grateful to Greta Gerwig, Margot Robbie, Ryan Gosling and the rest of the cast and production crew for The Barbie Movie for bringing this story to life in such an entertaining way, while giving all of us something to think about—and more importantly, something to work toward. 

Happy Blogoversary!

A decade later, it’s STILL easier said than done.

The other day, I realized this blog is now in the “double digits.” That means that for more than a decade, KitKat and I have used this space to vent, confess and—hopefully, at least occasionally—to inspire. 

Of course, there was no acknowledgement of this momentous occasion from me back in early January when the Blogoversary occurred. That’s because over the last five years our contributions have been extremely erratic, if not altogether absent, and frankly, I just didn’t notice.

Let’s face it: We’ve all been through a lot. As a world population, we’ve survived a pandemic. As a nation, we’ve survived an attempted overthrow of our government. And on a personal level…well let’s just say that, KitKat and I have each dealt with some personal challenges as well. 

For a long while now, nearly every time I’ve thought about writing a blog post, I’ve had Writer’s Block. Blocked by an inability to articulate what’s on my mind. Blocked by sadness and frustration. Blocked by my desire to adhere to our “brand promise,” which doesn’t include veering off into angry political tirades month after month. (And yes, I know there have been several instances when that anger slipped through anyway!) 

To be honest, I’ve been depressed. I still may be depressed, actually, but I think that I’m finally, FINALLY starting to come out of it. What’s changed? Well, my fears related to the pandemic and political environment have eased somewhat, but more importantly I’ve returned to a fundamental belief that is key to managing my own frustration: The root of all suffering is attachment. 

When I first learned of this principle while studying Buddhism in college, it was like a lightning strike to my angst-ridden brain. Of course! It was so OBVIOUS! But understanding something and internalizing it are two very different things, and Stormy and KitKat are both so notoriously bad at bringing those two things into alignment that they even named this blog after their perpetual struggle!

During an argument with a friend last year, he reminded me: “People will always disappoint you.” And I realized that truly was my problem—I was attached to my rather high expectations of 1) what others should be doing, and 2) what I should be doing myself. 

As a result, I was being disappointed on the daily… And that’s no way to live… So it’s personal growth time for Stormy, once again.

A few years back, I wrote about Stormy 2.0… Well, to be honest, I’m not sure WHICH version of Stormy I am today. We’ve been releasing updates on a 2-week sprint cycle for several years now, with multiple patches being deployed as needed to address bugs. (That Stormy is one buggy product!) Let’s just say that the only constant is change. But here is what I can tell you about me, and this blog, going forward:

  • Like Yahweh and Popeye, I am what I am. But I accept that what I am is also constantly evolving, and I’m no longer going to be as “attached” to the notion of whether you like it or not.
  • I’ll likely cut you more slack than I have in the past, because I realize now that you’re perfectly imperfect.
  • I’ll also cut myself more slack than I have in the past, because I’m really the only one I can count on to be with me every day of my life. 
  • I’ll drag KitKat along for the ride, because she’s been on a completely different yet parallel journey, and I believe she also has some new insights to share. 

It’s only natural that this blog will continue to evolve along with its authors, and if there’s been one recurring theme on this blog, it’s been this notion of constantly reinventing ourselves. But detaching ourselves from previous expectations—about ourselves and others—doesn’t mean that we can’t still have some fun along the way. 

Stay tuned. 

A Tale of Two Bettys

On Friday, as I was anxiously counting down the final moments of this dismal year, I got the news from my husband that Betty White had died. “Really?!” I asked, while already fully believing it was true… After all, I was well aware that people were looking forward to her 100th birthday in a couple of weeks, and it’s really not a stretch to wrap your head around a 99-year-old dying rather suddenly.

My next thought was, “Well, that’s just apropos for 2021. Another good and positive force in the universe…dead.” 

The previous day, I had been visiting another Betty—my 94-year-old mother—in her memory care unit, where she’s been since the pandemic first started. (Her memory had been waning for a period of time before we were able to forcibly move her from her assisted living apartment to memory care in 2020. I can’t tell you how lucky we were to get her into a care unit immediately prior to everything locking down.)

On the day I visited Betty G. (aka Mom), her dementia had her very confused and weepy. Her younger sister (her only sibling) had died a couple of weeks earlier, and she remembered that loss and was feeling it acutely. Since my dad died in 2017, she’s lost numerous other loved ones of her generation, and the few that remain are mostly incapacitated in memory care units and nursing homes, unable to visit with an old friend who would greatly benefit from it. 

As my mom sobbed on my shoulder, I hugged her and told her that she was okay. I told her she was safe and cared for in her apartment and that even if she didn’t remember our visits, we were visiting her regularly. I reminded her that she had spent Christmas Eve with me and my family and Christmas Day with my brother and that we would continue to see her and take care of her. Over and over, she thanked me for being a good daughter and told me how much she loves me. 

This may not seem that remarkable, but it really is. If you’ve followed my family saga (and unfortunately anyone who has had to interact with me over the last 10 years has heard versions of it), you’d know that we’ve gone through hell and back with our aging parents. I first wrote about this here in 2013. As my dad’s dementia progressed, we wanted my parents to downsize and move from their house to an assisted living community where my mom would have help caring for my dad. She flat out refused. Over and over again. We tried hiring in-home care. She fired them. To say this put a strain on our relationship is an understatement. It felt like we were at war. 

Betty G’s sense of humor is often hidden these days, but occasionally shines through.

After numerous health emergencies, we finally had an intervention with my mother (and got a social worker to moderate the discussion). This is referred to in our family as the “Ill-Fated Meeting” or IFM for short. It ended with my mom basically telling us kids to all go to hell, that she regretting having us and didn’t care if she ever saw us again. I’m not exaggerating. She hit us. She spit at us. I had never seen anything like it. She more or less told us that we were irrelevant, that she valued her possessions more than her relationship with her children, she didn’t care about the impact her behavior had on the rest of us, ad nauseam. 

Afterward, in shock, my disowned siblings and I went to the local bar and consoled each other while dredging up the worst memories from our childhood. My mom had always been a very controlling person while raising us, and we all had our personal issues with her. For me, it was lack of support in me wanting to go to college and a very outdated view on women’s roles. Her only aspirations for me were to get married and have kids. She would have supported me becoming a “stewardess” for a short career before marriage (but only because she thought that was a glamorous occupation and was hoping for some travel benefits).

Anyone who knows me will laugh at the image of Stormy as a flight attendant (so much for the “friendly skies”). However, I was lucky compared to my older sibs who experienced an even more domineering parent. My sister can tell you about a Battle Royale that erupted over addressing envelopes, for example. By the time my younger brother and I were teens (numbers 8 & 9), my mother had nearly “given up” on child-rearing, so we had considerably more freedom than the older kids. 

After the IFM, my dad’s health continued to deteriorate. With each hospitalization, we’d try to get the hospital to intervene and require that he be released to a care facility. They had a note in his medical record that my mom’s insistence on caring for my dad alone was bordering on “elder abuse,” but we were helpless to change it without going to court and claiming her incompetent. Finally, after a terrible 91st birthday in which my weakened father fell multiple times, we kids hired an ambulance to transport my dad to a nearby senior facility and had him admitted to hospice. We drove my mom over to be with him—with no intention of letting her return to their home.

This was in December of 2017. Dad went straight into hospice and we moved my mother—completely against her will—into an assisted living (AL) unit. We had given her a week’s notice to prepare, but she must not have believed we’d actually defy her because she didn’t pack a single thing. Since she refused to cooperate with us, we decided which of her belongings to move with her. (And believe me, deciding what items from to move from a three-bedroom house stuffed with 70 years of accumulation was no easy task). We didn’t move her car along with her. Having seen her vulnerability to scams and increasing confusion around how to use her computer, we didn’t let her have that either. 

My mom was furious. She threatened to call the cops. She threatened to call a lawyer. We told her that there was nothing legally stopping her from moving herself back home, knowing that she didn’t have the mental wherewithal to pick up the phone and coordinate such a move. It was basically every senior’s worst nightmare of their children dictating their future, and we didn’t want it to be that way. We literally had no other options. 

My dad was in hospice for two weeks before he died of congestive heart failure. My mother was devastated. They had been married for 70 years and had met as teenagers. My dad was a wonderful man. Her loss (and our loss) was profound. 

For approximately two more years, my mom lived unhappily in her AL apartment. We would visit her, but the visits would often devolve into screaming matches with her insisting that she wanted to move back home. Her memories were completely distorted. She couldn’t recall any of my dad’s falls or hospitalizations, or her own hospitalizations for that matter. She didn’t recall the years of us begging her to choose a senior apartment, so we wouldn’t be forced into doing what we ultimately were forced to do. In that stage of her early dementia, her recollection was that she and my dad were doing just fine living on their own and were blissfully happy until her terrible children intervened with the intention of taking control and running off with all their stuff. 

In younger days…a rare moment of relaxation

An aside on that: My parent were solidly middle class people raising nine children. They couldn’t afford to send any of us to college. They had no valuable possessions that we were waiting to get our hands on. Cleaning out the house was a painful process that took us over a year to complete because we were so disheartened and depressed about the situation. We each took a few items that were sentimental or useful (you can never have too much Corningware in my book), but if my mother knew how many truckloads of her valued possessions ended up at Goodwill or in a dumpster, she would have been appalled.

As my mother’s dementia continued to progress, we had to forcibly move her again into memory care (with more threatening to call the cops on us, etc.). Due to these experiences and the resulting strained relationship with her kids, half of my siblings don’t visit with her on a regular basis. Yet, she has no recollection of all this ill will and their negligence is breaking her heart. 

Well, you’re probably thinking, this Betty story is depressing as hell. What’s Stormy’s point? 

Here it is. We all get to choose which “Betty” we want to be. 

Watching various tributes and retrospectives of Betty White’s life, a few themes emerged as to what made her so beloved. Granted, she had a phenomenally long and successful career, but that’s not why so many are celebrating her life. Instead, it’s because: 

  • Betty White lived, right up until the point where she died. This is no small feat. My mom has mostly given up and is literally counting down the hours until her death. Although she has some crazy longevity in her family and triple-digits are not out of the question, I doubt she’ll make it another year simply because her will is gone. 
  • Betty White kept a positive attitude. She had sorrow in her life, but chose to look on the bright side and embrace living while she could. My mother now tries to be pleasant and to take her situation in stride. She regularly tells me that she thinks she’s in a nice apartment and that the caregivers are very nice (which is a big improvement from earlier when she referred to it as “a fancy prison”). Unfortunately, it’s hard
  • Betty White had a great sense of humor. She wasn’t afraid to look silly or undignified if it could make someone laugh. She knew that humor isn’t a luxury; it’s a necessity for coping with this ludicrous world. My parents both had good senses of humor (that comes with raising nine kids, I guess), and it makes me smile when my mom is able to crack a joke, despite her situation. 
  • Betty White wasn’t afraid of the future, she was realistic about her aging and made necessary accommodations but continued to be curious and optimistic about the world. My mother was in denial about the fact that she and my dad were aging and couldn’t continue to do the things they had always been able to do on their own. She thought her kids were out to get her for suggesting that they prepare for their old age. It’s not uncommon for older people to look with confusion and disdain on new technology and changing attitudes and think “the world is going to hell in a handbasket.” My mom is firmly in that camp and, as a consequence, is anxious to leave this world (the source of so much frustration and pain) behind. 
  • Betty White was an advocate for those without a voice. Whether standing up to racism, embracing the LGBTQ community or tirelessly working for animal rights, she understood that the best way to endure the tragedies of this world is by working to eliminate injustice. My mother volunteered in many ways when her kids were young and has a strong sense of justice. I think her influence led to me wanting to adopt Blossom. Unfortunately, both she and my dad had an old-school view of retirement—it was all about playing golf and having fun. Later, her sense of purpose came from caring for my dad. However, that also caused her to withdraw from the world and left a huge void after his death. 
  • Betty White made friends across all age groups and walks of life. Even after her husband and childhood friends were all gone, there were still plenty of people (and animals) to bring joy to her last few years. My parents gravitated toward a senior trailer park in Florida, where they hung out with their lifelong friends. They were away from the family for half of the year and never became that close with their many (30) grandchildren or great-grandchildren. My mom constantly grieves the losses of her childhood friends, parents, sister and my dad. She has only her children as companions and mourns the ones she doesn’t see regularly. It’s a sad existence, particularly at times like these when her senior community is experiencing a Coronavirus outbreak, and I’m not allowed to visit. 

I have a habit of looking both backwards and ahead this time of year, and I want to end this blog on a more upbeat note. There’s a silver lining in this story, and that’s my personal relationship with my mom. For many years—about a decade—I was so stressed over the situation with my parents/mom and so exhausted from the fighting that I was secretly wishing it would end (and could only envision one possible ending). Yet I knew that my overwhelming feeling, upon learning of my mother’s death, would be one of relief. And that realization made me feel terrible. 

Fortunately, as my mother’s dementia has progressed, she has reverted into the more nuanced person I knew growing up. She’s still not perfect, but she’s SO MUCH better (and nicer to me) than in the days of the Ill-Fated Meeting. (In fact, I may be the only child in this world who is actually grateful for her parent’s Alzheimer’s.) These days, she no longer accuses me of lying or gaslighting her when I recall something that she’s managed to block out or simply doesn’t remember. She’s incredibly thankful for my visits and tells me over and over how much she appreciates me and loves me. She now gives me hugs and kisses every time I see her. (I’ll confess that, as one of nine kids, I NEVER got as much parental affection or attention as I would have liked from my mother. It just wasn’t her style. My dad was the affectionate parent, which is part of why losing him was such a tremendous loss.) 

One of the infamous “window visits” during the 2020 lockdown.

What’s tragic, though, is that she often laments her plight—saying, “I never thought I’d end up this way.” This is ironic because we kids not only saw it coming (as though it were an out-of-control locomotive barreling down the tracks), but we TOLD her (multiple times!) this is what would happen if she didn’t work with us to make arrangements for later in life.

So the silver lining that I mentioned is this: Now, when my mother finally does pass away (and I’d be surprised if she makes it to another new year), I know my feelings will be different than five years ago. I think I’ll still feel some relief, and reassurance that she’s with my dad and no longer sad and frightened, but I know this: I will miss her as well.

Looking back on the last, most difficult, decade with her, I now have a different perspective. I believe my mom was under an enormous strain caring for my dad, but as part of the “Greatest Generation” was committed to taking it all on herself. I also believe she was seeing evidence of her own forgetfulness and was terrified about losing control. And she projected so much anger on us kids that I just couldn’t see past it. We should have done more to help her, despite her refusal and her protests. I actually wish we had forcibly moved them earlier than we did, so that she and my dad could have had additional care and some higher quality time together during their last few years of marriage. 

In cleaning out my parents’ house and belongings, it also became apparent to me that my mom had some significant undiagnosed mental health issues her whole life (ADD/OCD/depression and who knows what else). Again, mental health wasn’t something people of her generation talked about. You were just expected to cope the best you could. Given these challenges, I think she really tried to do her best in raising us, even if we feel like she sometimes fell short. Raising nine competent kids is an incredible feat. 

So, my hope with this New Year’s blog is to get you to think a little about your own future. Some of you may be nearing retirement, some of you are just starting to raise kids, some of you may have horrible relationships with your aging parents and feel alone in that. (I assure you, you’re not.) What do you want your future to look like?

I’ve inherited some of my worst traits from my mom. Like her, I can be very critical. Like her, I have a sharp tongue” and often say things I regret. But over the last few days I’ve been thinking a lot about which “Betty” I want to be, and I encourage you to do the same. 

I will continue to love and honor Betty G. and make her last days as pleasant as I can. But for my own future, I’m choosing to be like Betty White. 

Troll Control: Don’t feed the algorithms!

Have you ever known something but also not known it at the same time? That is, you intellectually know the facts around a subject, but emotionally or philosophically it takes you a while to connect the dots? I had that experience last week and when the realization hit me it was a revelation, so I thought I would pass it along to anyone else who might be struggling with this same issue.

Social Engineering via Social Media

I’ve had a love/hate relationship with social media since its inception. I have a very large family, as well as a network of friends and acquaintances that span the globe, so I love the ability to stay in touch via a simple and cheap communications tool. Cute baby photos, friends on vacation, funny memes from old classmates… that’s all lovely. I’ve also created group pages for my church, my condo association, and other families who have adopted from Blossom’s orphanage in China. I enjoy having a way to communicate with members of these various groups on topics of mutual interest. Lastly, as a marking professional, I also appreciate social media as an inexpensive advertising medium that lets you target specific audiences with ease.

However, what I HATE about social media is the way it turns seemingly rational human beings into abusive bullies and allows horrible people to connect with like-minded dirtbags who validate each other’s twisted views. And, when you add in Russian trolls and others who are actively and intentionally stirring up trouble in our country to divide the populace…well, let’s just say that checking one’s newsfeed becomes an exercise in blood pressure management.


If you click on the Haha emoji in response to anything but an obvious joke, chances are, you’re a Troll.

Tips by Stormy

Thankfully I have naturally low blood pressure, but the anger and vitriol spewed forth on Facebook have caused me to abandon my account several times in the past. I find it very difficult to not confront those spreading misinformation or abusive, racist statements, so I often find myself in a protracted online debate with someone whose mind I know will never be open to reason or facts. Yet despite this, I feel compelled to try. (Nevertheless, she persisted!) I feel that to leave these statements unchallenged is to appear to agree with them—the last thing I want.

These online conversations usually end with the other party giving me the “Haha” emoji (which I’ve concluded is the universal response for ignorant trolls who can’t think of any other way to counter a sensible argument). Invariably, these exchanges always leave me feeling drained, discouraged and, frankly, hopeless about the state of our country. At times it seems like the bad people far outnumber the decent people, which is a very depressing thought indeed.

And of course, that’s the point.

It was during one of these threads—about whether to mandate masks in our state—when a commenter posed a seemingly innocent question, “Who decides which comments are ‘most relevant’?” I believe they were noticing the default Facebook setting that displays relevant comments and implying that relevancy was determined by the “liberal elites” who manage our governor’s Facebook page. So, I ignored the implication and replied literally: “The Facebook algorithms.” This was followed by another baiting question, “But who designs those?” So I went into a high-level explanation of how the algorithms work. Now granted, algorithms are more complex than the explanation that follows, but I think it’s important for all Facebook users to understand the basics:

They’re in it for the money, honey…

Facebook is not free to use because Mark Zuckerberg is a philanthropist. The company makes money by selling ads to marketers (like me) to get them in front of potential customers (users like you). The beauty of the platform is it lets marketers target certain personality profiles and keywords based on information provided by the users—the groups you belong to, the pages you follow, the businesses or locations you “check-in” to, hashtags you use, things you post about, the comments you make on others posts, etc. The more specific the targeting, the more effective it is (and the more valuable it is for the advertiser).

If this strikes you as an invasion of privacy, you really shouldn’t be on Facebook. It exists to monetize your personal information. I know that and it doesn’t bother me. I don’t post truly private info, and if I’m going to be bombarded with ads online anyway, I would rather they be relevant.

Wallflowers need not apply

In order for Facebook to understand who you are, it needs you to engage. In other words, if you log on to Facebook and scroll through your feed, but never join a group, never like or comment, etc., Facebook has no real way to know who you are and subsequently can’t market effectively to you. (In other words, it won’t know what kind of ads to show you.) It’s the social equivalent of standing in the corner at a party.

Some people—KitKat for one—take this wallflower approach (ironically, in real life she is the first one on the dance floor). Because KitKat is also a marketer, she needs to understand Facebook, but she’s chosen to only observe on Facebook and never engages personally. Consequently, KitKat doesn’t stress out over social media the way I do. 😉

How to be relevant

Facebook wants and needs you to be an active participant in order to create the targeting data it needs to feed the algorithms. One way it does this is by trying to serve up the most interesting information, so you keep coming back for more. This is where the “Relevant Comments” come in. Although my troll friend wouldn’t believe it, there is no Democrat sitting in a Facebook cube that is marking every left-leaning comment as “relevant.” However, each time someone “likes” a comment, replies to a comment or tags the poster of a comment, it increases the relevance of that particular comment.

As I mentioned in the intro, I knew all of this already. But when I was explaining it to the online troll the understanding suddenly hit me like a ton of bricks: I had been making the problem worse!

Each time I replied to a negative comment or misinformation, I actually increased the relevance of that comment. In other words, I was directly contributing to the process that prompts the Facebook algorithms to deem a comment “relevant.” As a result, I was causing it to be shown to more people via their newsfeeds—which is the exact opposite of what I wanted to be doing.

If you’re an 80s kid, you might understand this analogy: “Feeding the trolls” is like feeding your Gremlins after midnight. It causes all hell to break loose.

But as the lightbulb went off in my brain, an even brighter realization occurred: I was overestimating the number of bad guys! There were far more “good guys,” but the nature of our collective interactions were giving the bad guys more visibility than they deserve! So, the question then became: Should I be addressing trolls at all? And if so, how? It turns out there’s an easy way to work around the relevancy algorithms and still fight for truth and democracy…

Slaying Medusa

Never directly comment on a negative post. (I would make an exception for dangerous misinformation, but then only comment to discredit it—by linking to accurate information—not to start a debate.) If you see a negative comment on an otherwise positive or neutral thread (particularly if it’s a news source), don’t click on the angry face, sad face or the aforementioned “Haha” emoji. Also important: Don’t tag the person who made the negative comment so you are replying directly to them. All that will do is increase their comment’s relevance. Instead, click like/love on as many of the positive comments you can to increase their relevance and thereby drown out the negative voices.

Here’s a simple example:

Misinformation Marvin: Masks don’t prevent COVID-19. They increase transmission by 50%! Health experts agree!

Concerned Carly (clicks angry face on Marvin and tags him in reply): Misinformation Marvin, They actually DO help reduce the spread…Do you have a source for that statistic?

Having participated in conversations similar to the above, I can tell you that chances are Marvin’s next comment will cite a blog post by some obscure ex-professor who was fired from his teaching job for being a rabble rouser. Then, Carly will try to point out that it isn’t a credible source, and the exchange will go downhill from there until Marvin ultimately resorts to clicking on the “Haha” emoji.

A better approach…

Misinformation Marvin: Masks don’t prevent COVID-19. They increase transmission by 50%! Health experts agree!

Concerned Carly (does not click on Marvin’s comment or reply, but posts a new comment): I see that some people on here (like Marvin) are spreading misinformation; however, here’s a legitimate source that explains how masks actually DO help reduce the spread…[Links to reputable source]

As mentioned earlier, in addition to not commenting directly to Marvin, Carly should also click on every comment that supports her argument and/or cites credible sources. This will raise the relevance of those comments which, in turn, will increase the likelihood that they will show up in others’ feeds.

I call this approach “slaying Medusa” because the essence of it is to attack from the sidelines and not look directly into the eyes of the troll. It may be true that “eyes are the window to the soul.” But in the case of the typical troll, that soul is a black void—and you don’t want to view it directly, lest it turn your heart to stone. Commenting indirectly to trolls and reinforcing the positive posts directly is a simple way you can keep the focus of the conversation on fact-driven, compassionate, democracy-loving people and take the microphone away from those who are trying to damage our country and sew divisiveness.

By elevating the positive conversations and shining a light on true, factual information, we can inspire those who are on the fence about the next election to do the right thing for America. There are three critical months left before November 3rd. Let’s do everything we can to control the trollsand particularly to get the “Troll in Chief”out of office!

 


Stormy & KitKat for office? That’s just the ticket!

Someone recently posted on my Facebook page, “Stormy for President! I’d vote for you…” This made me laugh because I view politics as a necessary evil and generally identify as an Independent. I usually have very little to say on the topic and have only been opinionated this year because a madman is in the race. However, the post got me to thinking: “If I were running for president, what would my platform be? What are my beliefs and how do they define me?”

True to my apolitical roots, I’m going to stay away from foreign policy, gun control, and economics (although I have opinions on all of the above) and, as I’m running an honest, transparent campaign, I’m going to tell you what I really believe.*

It’s never too late – Maybe I’ve watched Scrooge too many times, but I honestly believe that everyone has the capacity to change—and at any time—so long as they want to. I keep hoping that will be the case with my 89-year-old mother, but I’m trying to balance that by having no expectations that she actually will change. That’s a tricky balance.

Find a penny, pick it up. All day long you’ll have good luck – I never walk past a penny on the ground without stopping to pick it up. It’s not that Stormy is cheap, but she is thrifty. At one time lack of finances was a very real issue for me, so I like to remind myself how far I’ve come and remember that it still is an issue for many others. Even if I’m blessed with a comfortable lifestyle, I never want to discount money’s worth—even if it’s a lowly penny—out of respect for those who must save every cent.

He who hesitates…is going to have to wait for me – I adhere to the rules of the road (in most cases) but if we come to a stop sign and you don’t go when it’s your turn, I’m not going to sit around waiting for you. I’m going.

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This jacket actually has Stormy looking forward to cooler weather…

Smart people buy used – There are people out there who think buying used is for “poor people” and won’t purchase anything that’s not in the original packaging. Poppycock. You get way more for your money buying certain items used (cars, clothes, everyday dishes and glasses). I’ve admitted to being a bit of a clotheshorse, but people don’t realize how much I purchase secondhand: Like my cashmere sweaterdress from Neiman Marcus, the Missoni dress I wore to my niece’s wedding reception or my new favorite: The black leather moto jacket I bought from ThredUp. The best thing about buying consignment clothes is you get a preview into how well they will hold up and can get high-quality threads for knock-off prices.

If you’re having a terrible day, end it – No, I’m not advocating suicide…just an earlier bedtime. Occasionally, despite our best efforts, some days just suck more than others…but getting a good night’s sleep can improve your whole perspective.

If you’re having lots of terrible days, do something about it – If your circumstances are making you miserable, change them. Oftentimes, the biggest hurdle standing between you and a positive change is your own attitude. Maybe you can’t make a wholesale life change (like quitting your job) immediately, but you can take steps toward change (like updating your resume or brushing up on a skill that will make you more marketable). If you absolutely cannot deal with your circumstances OR if your life is good but you’re still miserable for some unidentifiable reason, PLEASE SEEK PROFESSIONAL HELP.

All things in moderation – Fanatics (of any type) scare the shit out of me, so I stay away from environments that encourage fanaticism (sports play-offs, political rallies). I also try to understand both sides of an issue, because there are very few situations that are as black and white as they first appear. But I’ve found that this moderate approach works for other things as well. Dieting? If you deny yourself your favorite foods, it’s probably just a matter of time before you fall off the wagon. If you satisfy those cravings with a moderate amount of chips (or whatever) on occasion, it may take a little longer to lose the weight, but you’ll be more likely to stick with your overall eating plan.

Big changes start with small steps – There’s power in motion and sometimes great achievements are made through lots of little mundane steps. When I was working toward my bachelor’s degree, I was married and raising small children, while also working part-time. Progress was slow, but 11 years later, I had a degree. That success also led me to earning an MBA a decade later…(Thankfully, it didn’t take a decade to earn that one!) The habits-quotespoint is, those achievements were the accumulation of MANY mundane steps, but by sticking with them and keeping my eye on the finish line, I got there. This same principle can be applied to so many things. As Woody Allen said, “80% of success is showing up.”

How about you, KitKat? What does your “platform” look like? (And no, I’m not talking about shoes…)

KitKat Weighs in…

It’s KitKat, remember me? I have been a bit quiet as I adjust to a new job while balancing my normal chaotic family schedule. But, there is nothing like a political debate to pull me out of the shadows. Having divorced parents on two opposite sides of the spectrum, I have grown up listening to opinions shared with extreme passion. I learned that it is ok to express your beliefs, and a good family debate is sometimes a great way to firm up your own convictions and even counts as quality family time.

Though I found Stormy’s expressed beliefs undebatable (including the madman), I thought I better add mine to the ballot. Who knows, she may ask me to be her running mate!

Share the real things – I love seeing everyone’s photos documenting all the bests, but don’t forget to share the other real things too. Friends, acquaintances and even random bloggers, who have opened up or provided self-deprecating humor about struggles with kids, marriage, or other life issues have helped me in ways they will never know. Hey, it is nice to learn you’re not a freak with weird thoughts and emotions that no one else could imagine. It’s not about a bitch sessions. It’s just about being real. Otherwise, we all would just see the snippets from Facebook and wonder why our lives aren’t always made up of countless shiny moments like everyone else.

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KitKat shakes things up by taking her fear of flying on a seaplane in Seattle

Shake things up Try new things, learn new skills, meet new people and make different mistakes. Sometimes my risks are bigger like quitting a safe corporate job to join a start up and sometimes it is as simple as changing my hair color. Shaking things up keeps me awake. “To dare is to lose one’s footing momentarily. To not dare is to lose oneself.” – Soren Kierkegaard

Keep moving – Sometimes you just can’t fix a rough day or bad situation, but just physically moving will help get you out of the wallow of self-pity. Twisting your body into different yoga poses. Taking a walk outside. Or my personal favorite: turning on music and dancing. No, it may not fix anything,  but it provides a momentary escape from a really crappy day.

(This may sound like a contradiction to Stormy’s “end it” advice but think of it as an alternative to those of us who don’t have the luxury to go to bed early. Stormy and I support all lifestyles.)

Your life isn’t all your own – There are many great readings on how to be happy and do what is right for you. I devour these when I see the posts. Who doesn’t want to grow old knowing they were fulfilled in every way? But the real truth is life isn’t all about you. There are friends, family, kids and even strangers who also count. Sometimes you have to make sacrifices or do things for others that may mean giving up some more selfish choices. Your life is part of a community. People who are there to share in the highs, and pick you up from the lows. Your peeps, those you know or will know, are part of your life and decisions. And that is ok—you need them!

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You never know what kind of a fairy you may encounter!

Let children believe – Soon enough we learn fairy tales don’t always have happy endings. But let them discover that themselves. So at my house Santa and the Easter Bunny are real, or at least nothing any of us question aloud, so they will keep visiting. And of course I was a fairy in my 20s with all kinds of mystical stories to share with my daughter whose deepest wish is to also become one. And, I am going to let my son think he has a solid career plan, being that if he doesn’t get recruited by the NHL or MBL, he came up with the fallback job of  being a pro-sports lawyer. No reason to crush his dreams with realistic expectations at 13. Plus, it is fun to hear all the things he is going to buy me when he is rich and famous. Let children believe in the whatever after. I find that going along with their imaginations lets me believe a bit in magic and wish bigger too.

Words count – Words hurt, much more than sticks and stones. The things we are told stick with us. Some of the comments told to us out of anger or disappointment, haunt us later. You may be surprised how much someone held on to words you forgot you spoke. It is ok to be honest and tell people the truth. I advocate for not being passive-aggressive and as I mentioned above, being real. The hard part is to remember to also go back and share when you don’t feel that way anymore or when they have made amends. Words also have power to heal. (This is something I am trying to remember in dealing with my own kids—especially navigating around a temperamental pre-teen.)

Arguing is ok – Simply put, if I am not willing to argue with you, that’s when you know something is wrong. There is passion in caring.

Embrace everything that has shaped youEveryone has made some choices that they may go about differently given the chance. But it’s not just “right” choices that form the better you. Sometimes it’s the other paths where you learn the most. I may not want my children making some of the choices I did, but I hope they safely make it through some unchartered journeys. Instead of living in a cloud of regret, remember the things gained or experiences had. The skeletons in your closet are also your treasure chest of memories and learnings. For example, the R-rated job I took up in college; sorry Mom and Dad but I am still glad I was dumb enough to make that bad choice. Love all of your story—it is what makes you interesting.

Some things are best left alone – As much as I stand for trying new things and always improving, sometimes we need to realize when we already have something good and just leave it alone. For example, take Swedish Fish Oreos. How could someone take one of the best candies, which I will eat until my teeth actually hurt, and combine it with a favorite classic childhood cookie. You took two greats and transformed it into an awful. Another example is taking a yummy piece of bread and then dipping it in a bowl of creamy tomato bisque. Now you just created wet, and pinkish, bread—gag! (I loved those hot lunch trays in elementary school that kept my foods separate.) Basically, don’t ruin a good thing when you have it.

What do you say, Stormy? Should we throw our hats in the ring? The way most Americans feel about their choices this year, we may actually stand a chance. 🙂

*This list was inspired by another blogger whose work Stormy admires. See the original post here.

The family you choose…

At the beginning of summer, my company lost a dear colleague unexpectedly. This woman was the kind of person who had friends everywhere—at all levels within the business, in all geographies—and it sent everyone into shock and mourning. Fiona had relocated to the US from our UK office but was born and raised in Ireland. During the last decade, she worked mostly in Minnesota, spent a couple of years running our India office, and patched together a wide network of friendships that included coworkers and even clients. During her brief hospitalization and subsequent death, the closest of those friends gathered together with her parents who had flown over from Ireland to help plan her services, settle her affairs and share a decade’s worth of memories, laughs and tears.

At her memorial service, someone referred to these closest friends as the “family Fiona chose” to surround herself with when she was far away from her actual family back in Ireland… and that phrase stuck with me… I think we all do this, to some extent. Even when our actual families are just down the street.

friend signThere is an inherent difference between family and friends—at least in my introverted view of the world. While regular friends are a great addition to one’s life, they can invoke a bit of anxiety for an introvert: Do I seem friendly enough? Am I being “fun”? Am I acting like a dork? (Shades of junior high.)

Family is another matter. They’re stuck with me—in all of my dysfunctional glory. If a family member drops by unannounced, I throw open the door without worrying that the house is a mess. If there’s a lull in the conversation, I’m not compelled to fill it. They can see me without my make-up or with a stain on my shirt and I won’t lose sleep over it. We can bicker about something, but I know they’ll love me anyway. Sometimes, however, despite our love for our families, we don’t always share the same views or interests. And so we may not hang out with them the way we would a friend. But when friends and family come together in the same person, it’s a beautiful thing.Clean

I have lots of acquaintances, but I have a smaller number of “friends” and an even smaller subset of friends that I would classify as “family I choose.” But when I realize someone has reached this hallowed status, I try not to take them for granted.

KitKat, for better or worse, has reached this status. We’ve known each other for 18 years and know the ways in which we’re different and the ways in which we’re exactly the same. I can always trust her to “give it to me straight” when I need a dose of reality. At the same time, if I’m anxious or upset about something, I know she’ll say exactly the right thing to calm me down. Since KitKat’s the oldest girl in her family and I’m the youngest in mine, our relationship gives me the chance to be the big sister and her the chance to be the little sister… Because, alas, I’m four years older, I’ve undergone certain milestones first. Both the good (marriage, children) and the bad (turning 50). For all of that, it works well. After all, I’m capable of giving awesome advice (even if I don’t always follow it myself) and KitKat is great at helping me envision a better version of myself.

I’m blessed to have a few other friends in this category as well—and also a couple of family members who I think would still be “chosen family” even if they weren’t already sharing the same last name.

shenanigans
This one is dedicated to Fiona. 🙂

At my colleague’s memorial service, it was clear that her chosen family knew they were special to Fiona. She made a point of living her life that way. Her death was a reminder to make sure my own “chosen family” understands what they mean to me.

 

Chasing rainbows

I know what some of you are thinking… “I started reading this blog because Stormy and KitKat promised they are more messed up than me. But now all I’m getting are introspective posts on world politics, brain surgery and death. I want to know how is Stormy handling being 50? What about the move? Is she still crazy?”

So for those of you looking for some shallow reading—the beach blanket chick-lit version of this blog—Stormy is happy to oblige. It’s the middle of summer and I’m exhibiting my usual, “Wait! Slow down!” despair as I contemplate the dwindling number of free weekends in which to schedule my summer must-dos. For example, I’ve had my boat for four summers now, and have yet to get KitKat and family out on it!

popeye-I-am-what-I-amI’m also in a weird mental place right now. There is so much that’s going well in my life, but for some reason I’m feeling aimless and dissatisfied. Do I need a new job? Do I need a new hobby? Do I need to just quit bitchin’ and appreciate my blessings (my money is on the latter). I need to figure out what the next phase of my life looks like.

It turns out that being 50 is okay (well, I’m actually 51 now). I still can’t believe I’m in this decade, but I just try not to think about it (denial is my friend) and keep doing what I’ve always been doing and wearing whatever I like. I believe in being comfortable and true to myself, yet I don’t want to get a lecture from my girls (“Mom, what are you wearing?… Really?”) so I try to temper my need for self-expression with a little common sense. I trust that they’ll tell me if I push the limits too far.

mature?I had an epic revelation the other day: I looked at my husband and said, “Woah. I just realized that I’m as mature as I’ll ever be. I probably am not going to mature any more than I am!” He laughed, but I pointed out the irrefutable truth of the situation: By the time a person turns 51, that’s pretty much it. That individual isn’t going to get a whole lot more mature. For some reason, I found that oddly comforting…knowing I’ve reached an age where I no longer have to worry about trying to be older or more sophisticated or younger or hipper. I am what I am (a favorite saying of both God and Popeye). In other words, this is it, folks. Move along, there’s nothing more to see here.

On a brighter note, Oskar and I are celebrating the anniversary of our move into our downsized digs. This was a monumental effort last year—I still get exhausted just thinking about it. On the other hand. I L-O-V-E LOVE our new home. It’s the perfect size. It’s in a perfect location. I love having a new space to decorate. I also love having very little maintenance work. And although I had a tough transition in seeing my little chickies fly the nest, now that we’re out of their childhood home, I love living the life of an empty nester. It’s sort of like being newlyweds again except now we have more time (we were only married for a little over a year when I got pregnant with my oldest) and more money.

shark5Which brings me to the last update—you’ve already read about my husband’s successful surgery, so the big question on everyone’s mind (well maybe not, but it’s on my mind, at least) is what’s next? I wish I knew. I know myself well enough by now that I realize I always need some type of project to keep me focused and happy, and right now I don’t really have that and I feel like I’m floundering as a result. It’s an uncomfortable feeling, and I’ll keep searching for that “thing” that will make me feel grounded. I’m not sure if it will be work, school, a hobby or volunteer work, but I’ve always lived my life like some species of shark—that is, I need to keep moving or I know I’ll drown—so I’ll keep chasing rainbows until I find that emotional pot of gold. I haven’t figured out the answers yet (another example of “easier said than done”), but as soon as I do, you can be sure I’ll let you know!

Test driving the new brain

In my last post, I explained the process my husband was undergoing for brain surgery. I’m happy to report that the results are better than either of us were expecting. I’ve described his off and on periods before, but this video shows his results better than I can explain. The “task” is to go back and forth between two pieces of tape as fast as he can. In the first snippet, he is completely “off,” no DBS, no meds. In the second, both are working together.

The beauty of his DBS device is—even when his meds are “off”—he still has about 70-75% mobility, compared to about 20% without the device (see the chart below). As you might imagine, this has been life-changing. (Editor’s note: That’s not a word I use lightly—I once wrote an article about getting braces as an adult and the magazine publisher wanted to edit it to have me say it was life-changing but I refused to put straighter teeth in that category. My teeth weren’t horrible to begin with and it was really more of a vanity thing.)

For the first couple of days we were stunned—we kept waiting for Oskar to go “off” to the extent he had previously on previous occasions and it never happened. Well, actually it did one evening…sort of. When we were out for dinner later the following weekend, Oskar felt the familiar slowness associated with being truly “off.” We were both a bit depressed about it—thinking the results had been too good to be true—only to discover when we got to our car that he had accidentally shut off the device. He pressed the on button and surged back to mobility. It was truly a miracle.

Oskar and I realized over the next week or so that many things that had been difficult or impossible for him to do while “off” were, once again, on the table…such as:

  • Driving
  • Cooking
  • Going to Target (invariably, if Oskar tried to go to Target while his meds were on, they’d crash on him just as he was needing to maneuver the checkout line/payment process)
  • Visiting his deceased mom’s elderly partner, Harold (see driving, above)
  • Riding a bike
  • Hiking
  • Standing while waiting for a table at a restaurant
  • Taking walks around the park
  • Sight-seeing

Actually, that last one was my realization when I thought, “What better way to test-drive the new brain than by going on vacation?” We had had a grueling, busy winter and were ready for some fun in the sun, so we booked a spontaneous trip to California to visit some friends and Oskar’s little sister—and to see how much of a contribution his DBS device would make to our vacation.

DBS_chart

The vacation was enlightening. The first night, we stayed with my high-school friend Dot and her husband. We had a fun afternoon and dinner out, catching up on Dot’s new hobbies (painting and pottery—which reminded me that I have to make time for more art in my own life) and her husband’s acting career.

The next day, after going out for breakfast, Dot was chained to her home waiting on an important delivery, so I decided to take Oskar on the hike we had done with Dot and my girls on our last visit, in a park near her house. I remembered the trail as being fairly long, but not too strenuous, and it had beautiful views of the LA area. Still, it was the type of hike that Oskar would have had problems with in the past—so I wanted to see if the “New Oskar” could handle it. We found the trailhead and headed up the path. The trail went up…and up…and up… I kept asking him, “Are you okay?” “How are you doing?” “Do you need to rest?” and each time he said, “No, I’m fine…” And here’s the thing: He WAS fine.

The next day, we went to meet Oskar’s little sister and her husband. They’re both scientists working for a biotech company and have a lovely home in Thousand Oaks. We had dinner at an interesting outside restaurant in the Santa Monica mountains. The next morning, we sat out in the backyard contemplating how to spend the day. (Interesting observation: Oskar’s sister and husband have a lovely backyard, complete with swimming pool, but don’t spend much time in it. “Do you entertain out here?” I asked, thinking of my love for outdoor parties. “No, not really” was the reply. It was a clear geographical difference—in Minnesota, it’s nearly mandatory that if it’s nice, you’re outside. No debates. We don’t have a lot of nice, warm weather, so we cherish every sunny day, and nobody knows how to celebrate the beauty of summer like a Minnesotan. California, on the other hand, sees so many nice days that its residents TAKE IT FOR GRANTED. This is nearly an unforgiveable sin, but our hosts did a good job of indulging our craving for Vitamin D.)

We grabbed a bottle of champagne and headed to an oyster food truck that parks along the ocean in Ventura. We ordered a variety of oysters—raw, fried, baked—and had a picnic on the beach. It was awesome. Oddly, my sister-in-law had gone running on the beach past the food truck many times, but had never stopped for oysters. So our visit prompted her and her husband to try it out. How many great experiences do we all overlook in our own hometowns, and how many cool things might we discover if we looked at our city through the eyes of a tourist?

Afterward, we went to a microbrewery and continued our day of indulgence. Later, we went up the coast and met an old college friend of Oskar’s at another microbrewery. (Do you see a theme here?)

IMG_3109The next few days were spent in the Santa Barbara wine country and one day consisted of a long day trip up to Big Sur and Carmel. All along our trip, I was evaluating how Oskar was handling things. He was able to drive more than he normally would (although I drove most of the PCH, he took the wheel for most of the route home).

On our last full day, we visited a number of wineries. We noticed that for the first time since Oskar’s DBS device had been switched on, he was experiencing some noticeable “off-time.” This tempered our “New Brain—New Life!” outlook a bit, and we were both a little quiet and reflective. What seemed too good to be true apparently was.

We returned home and back in his everyday environment, Oskar quickly rebounded to his new-and-improved self. We decided that Oskar’s off periods while on vacation were caused by a little too much beer and wine, combined with him taking a more lax approach to his medication schedule.

The vacation had mixed results… We learned that Oskar’s surgical success didn’t mean he was cured, but we also discovered that it was possible to turn back time to a point where Parkinson’s didn’t rule our lives. And we have to admit, we’re pretty excited about that!

 

 

Well, it’s not rocket science…

Right now, I’m sitting in a hospital waiting room as my husband has brain surgery. The road here wasn’t short. When he was diagnosed with Parkinson’s 13 years ago, we investigated treatments but found that there weren’t many options. The gold standard for Parkinson’s Disease is a drug called carbidopa/levodopa that Oskar has been taking for a number of years. As I’ve written before, it’s not a predictable treatment—sometimes it works, sometimes it doesn’t. Moreover, the longer one takes carbidopa/levodopa, the more likely one is to experience dyskinesia: Unintended movements caused by a surplus of dopamine in the system. These can be annoying (like when Oskar dropped my favorite mug) or potentially dangerous (for example, while driving).

For more advanced Parkinson’s patients, there is one surgical option—Deep Brain Stimulation (DBS)—but it isn’t a cure and the procedure can only be done once, so it’s usually not recommended until the disease is more advanced.

In recent years, Oskar started to reach a dosage level that brought on the dyskinesia. While the excess movements didn’t bother either of us much initially, it was becoming quite pronounced and, when he considered that along with the increasing frequency of “off” times, Oskar decided it was time to explore DBS.

Oskar volunteered to participate in a clinical study for a new device and underwent a series of tests to see if he was a good candidate for the surgery.

One of his consults required him to go off his medication overnight so that he was completely “off” while being evaluated. Then, they had him run through a series of motor tests to record his movements on video and time how long it took him to perform certain tasks. Then they let Oskar take his medication and he re-performed all of the tests with the carbidopa/levodopa in his system.

Now, I have seen my husband in both his on and off states hundreds of times, but the truth is I don’t pay attention to him much when he’s off. Oskar generally doesn’t like me to help him when his meds are off and it’s frustrating to watch him struggle and a bit depressing to see him sit there motionless. Truth be told, he’s not the best company when he’s off, so I usually go do other things while he waits for his meds to come back “on.” However, during the medical evaluation, I watched intently as he went through all of his motor tests both “off” and “on.” The difference was amazing. When he was off, he had a pronounced tremor, a blank expression, a softer voice, and very slow movements. When his meds came back on, you could see the relief flood his face. The tremor was replaced with dyskinesia, but he was more relaxed and able to do most of the motor tests with ease and greater speed. But throughout both on and off states, he kept his sense of humor and grace and reminded me once again what a classy guy he is.

The dramatic change in his motor skills was good news, though, because how well a person responds to the medication is an indicator of how they will respond to the surgical procedure.

brain surgeryOskar’s first surgery (on the left hemisphere of the brain) took 6 and a half hours. This was time he spent mostly awake with a halo screwed into his head, while the surgeon drilled a dime-sized hole in his skull and placed an electrode into his brain, looking for the optimal spot. The surgical team would test the location by having Oskar move his hand and leg and listen for the sound of the electrical impulses going from the brain to the muscle—basically listening for static. It took them five “pokes” to find the right location, but his surgeon was pleased by the results once they hooked him up to the transmitter because Oskar responded to very low levels of stimulus.

Before the procedure, family and friends offered their support—Do you need anything? Do you want someone to sit with you in the waiting room?—and I was actually a little confused by it. After all, this was a voluntary procedure expected to have a good outcome; it wasn’t an inoperable tumor or something… But as the hours wore on I started to get concerned; I hadn’t expected such a long time in surgery. My default coping method is denial, but that strategy requires one to keep busy so the real concerns don’t creep in. And that’s hard to do when you’re sitting in a hospital waiting room, alone, with a spotty wi-fi connection. After the successful completion of surgery number 1, I was grateful for KitKat’s company as I downloaded the day’s events to her over a glass of wine that evening.

Writing this in real-time, Oskar just completed his second surgery (for the right hemisphere) last week. This time, they were able to place the electrode on the first “poke,” although they took two more passes at it to ensure they had the proper placement. Although both procedures were somewhat exhausting and wore him out more than he was expecting, we were glad to get past them. All jokes aside, it was brain surgery, after all. We’re anxious to get through his final surgery later this week (implanting the transmitter in his chest) to see how much of an improvement he gains when they switch everything on later in March. The large scars on his head seem like a small price to pay for the increased mobility he hopes to gain.

It's a good thing scars on guys are "rugged and sexy"...
It’s good that a guy’s scars are “rugged and sexy”…

And there’s nothing like spending time in a hospital to remind you how fortunate you are. During these procedures, we both crossed paths with a number of people facing bigger challenges than us, and those encounters served as a humbling reminder of how lucky we actually are. We’re very optimistic about the outcome, but are trying to temper our hopefulness with reasonable expectations.

I don’t know what the future holds in terms of Oskar’s DBS results or how it might change our future, but I’m curious to find out. Yet, one thing Parkinson’s has taught me is to take it one day at a time—so you’ll find out when I do…a few months from now.

2016: Stormy’s year to “Choose Different”

New Year’s and its related resolutions are a perennial theme for KitKat and me. (YES, we’ve been doing the blog long enough now to have “perennial themes”—and the fact that this blog started out as a resolution proves my point, I think…)

From vision boards to attitude adjustments, we’re both a bit obsessed with self-improvement. Or at least identifying our shortcomings on a regular basis (ha, ha). Seriously, with how much I think about these things, I should be perfect by now. But as you probably realize, thinking and doing are two different things.

While I can be decisive and even a little impulsive, and I sometimes abandon my efforts when they don’t yield immediate results, I’m also a big believer in adopting the approach of the tortoise over the hare—slow and steady wins the race—and over time, small incremental changes can have a large impact on my life. Case in point: the bachelor’s degree that took me 11 years to earn.

Most of the time, it’s just about the choices you make.

Back when KitKat and I worked together, I had a 2 p.m. pop habit. (I suppose I should explained to some of our unenlightened readers that “pop,” not “soda,” is the proper nickname for carbonated beverages like Pepsi, or in my case, Diet Coke.) Each workday at 2 p.m., I’d saunter down to the break room and stick my two quarters in our company-subsidized (boy, in those days we were livin’ large!) vending machine. You could almost set your clock by my daily pilgrimage.

diet coke imagesWhen I left that job, I was unemployed for a while and quickly got over the need for my 2 p.m. caffeine jolt. However, on my first day with my current employer, I found myself in the breakroom at 2 p.m., dollar bill in hand (no subsidized vending machine there!) and as I was about to slide my money into the slot, I asked myself, “What am I doing?” Here I had successfully broken myself of a habit that was unhealthy and I nearly resumed it based on…what? A habit? A memory? I made a conscious decision NOT to buy the pop and have consumed very little since then—about 10 cans a year vs. the previous 60 or so.

GR_headerbooksThis remembrance inspired my resolution for 2016. What could I accomplish by simply making different choices? I was reading Gretchen Rubin’s book “Better Than Before” about the process of creating and breaking habits—if you’re a self-improvement junkie it’s a must-read. Around the holidays I received her e-newsletter, which included an article about choosing a New Year’s theme instead of a resolution. This theme would consist of a word (or words) that would guide decisions for the upcoming year: “Health,” for example, or “Learn.”

As someone with new-found time on my hands after our recent downsizing, I wanted to get in touch with activities I wasn’t able to pursue when I was taking care of a house and three kids, so I originally was going to make “Discover” my theme for 2016. Then I realized that word wasn’t broad enough to encompass the other changes I wanted to incorporate into the year ahead, so I revised my theme to “Choose Different.” This has a few meanings for me: One is synonymous with “Discover”—because I still want to explore new interests. But “Choose Different” also reminds me to challenge my dysfunctional thinking patterns and alter behaviors that haven’t been serving me well.

Apple
Srsly? I chose a variation of an old Apple slogan for my New Year’s theme? How derivative!

We’re only three weeks in, but so far it’s yielding some positive results. One change I made was to force myself to be less of an introvert at work. It’s something I’ve told myself I needed to do a dozen times before, but a 360 review coupled with a tongue-lashing by a coworker friend convinced me I needed to make a change. Well, it hasn’t killed me and it IS improving some relationships at work, so I’ll keep plugging along until it feels natural. There are other examples as well, and I’m curious to see where this theme might take me in 2016. I guess that is one of the benefits of getting to 50. I can see the horizon ahead and know that even if I don’t get to my self-actualized destination overnight, I can become a better version of myself along the way…simply by making smarter choices most of the time. Are you making any changes in the new year? Please share in the comments…