Category: Faith

What now? Stormy gears up for the long haul by creating a sanity plan

On By StormyIn Attitude, Faith, Family, Getting older, Health/fitness, Marriage, Politics, Relationships, Work/careersLeave a comment

Over the last several years, Stormy has been seeking direction.

When I was unexpectedly laid off in 2022, my subsequent job search revealed what I had always suspected—that marketing is a particularly age-sensitive field and age discrimination is real. Yet, it felt too soon for me to retire, so I decided to do some fractional CMO consulting work while I figured out my next steps. Marketing consulting is a tough gig for an introvert. In addition to marketing your clients products and services, you have to spend equal time marketing yourself.

As I was in this consulting phase, another marketing colleague was telling me about their new client who ran a MedSpa type of business, offering Botox, fillers and other “aesthetic” treatments. I was surprised (and dismayed) to learn that their target market was in their 30s! And while I won’t judge anyone for personally choosing treatments that may make them feel better about their appearance, I know that to effectively sell these products to thirtysomethings, a marketer would need to inject fear and insecurity into their hearts before they would agree to inject Botox into their young faces.

In today’s uncertain business environment, it’s difficult to pass up a paying client… yet, I’ve reached the stage in my career where I’m only interested in working with people and organizations whose values, products and services align with mine. Yet, I genuinely enjoy the social aspects of working, learning new things, and making a difference.

Meanwhile, on the home front, Oskar and I were discovering that you can’t outrun Parkinson’s indefinitely—although God knows, we’ve tried. Changes in his condition, like no longer being able to drive, are now requiring me to spend more time being a caregiver (a role that, anyone could tell you, I wasn’t exactly born for). 

The progression of Oskar’s PD symptoms also led to a host of related lifestyle changes this past summer: Moving from a condo with two stories to an apartment where all our living space is on one level, renting out our vacation condo, and downsizing half of our “stuff” to fit our belongings into the new, smaller space. 

When I had time to reflect on my situation—not loving consulting work, wanting more control over the products, services or causes that my efforts were going toward, and the need for a more flexible schedule at home to accommodate my husband’s illness—I had to ask myself… Was it finally time for me to retire? And what would that even look like? Oskar’s daily challenges made the stereotypical active retirement—lots of activities and travel—less feasible, so how would I fill my time? KitKat and I started this blog more than a decade ago (can you believe it?!) and in that time, I’ve reinvented myself again and again. Yet still I’ve felt aimless and discouraged. A friend suggested to me that as I face what is likely to be a more challenging stage with Oskar’s illness, that I needed find a way to not only accept my reality, but embrace it. To live a life of purpose vs. mere tolerance.

I’m still nearly a decade away from “retirement age,” but if there is one benefit of having a spouse be diagnosed with a serious condition at a relatively young age it’s this: It forced us to financially prepare for an unknown future. As a result, we never really subscribed to “lifestyle creep” as our incomes grew, but rather, we put as much as we could into savings—so that if either of us had to retire early, we would have the freedom to do that. 

I was mulling over my friend’s advice, but with all the downsizing/moving activity this summer, it was easy for me to push out any decisions about what to do next. So that’s what I did. I also knew that once the move was complete the election season would be in full throttle, and I couldn’t make a decision about my future without knowing what our nation’s future might hold. With Biden stepping down and Harris quickly pulling together an amazing level of support, I was hopeful and excited that we might finally get our country back on track. But I awoke in the early hours of Wednesday morning to headlines that absolutely shattered half the country. 

Talk about an unknown future!

After the initial shock wore off—replaced by a profound disappointment in my fellow Americans—I was surprised to find that I was oddly accepting of the situation. While I absolutely wish things had gone the other way, I firmly believe that some people can only learn important life lessons the hard way. And, unfortunately, this appears to be one of those times for many Americans. 

Anyone who has tried to reason with a MAGA cult member knows that you can’t. It’s the definition of An Exercise in Futility. Yet, because I have family members in the cult, I nevertheless persisted. For so much of the last decade, I have felt like we were at war with the mythological Hydra: Chop off one ugly head and a couple more appeared in its place. Lies. Disinformation. Hatred. Racism. Misogyny. Homophobia. Over and over. In addition to any personal challenges I was facing, I was constantly anxious and distracted by the news and social media. I found myself ignoring my health and using alcohol to calm my nerves. I lost my sense of joy. 

Just another day of defending the truth.

Last week, with my acceptance that Harris lost the election, came a realization that that particular battle was over. No, I’m not throwing in the towel on democracy. I will continue to work toward it. However, I’m no longer going to suit up and stare down the Hydra day after day. I’ve sacrificed a decade of my mental and physical health to an awful cult and I’m not going to give them another day. One week after winning the election, the incoming administration is already proposing a number of changes designed to undermine democracy. It’s clear to me that winning back our country will require a much longer-term strategy.

So where does that leave Stormy? One of my warrior outlaw in-laws sent a text on Wednesday saying she was working on a “sanity plan” for surviving these years under a wannabe dictator. I thought that was a great idea, but I took a slightly different approach. First, by drafting a personal Mission & Values Statement. Second, by drafting a Wellness Strategy. Together, I hope they will serve as my personal sanity plan. Here’s a high-level summary:

Mission & Values Statement

I believe that joy and positive relationships are essential to life, but each person must figure that out on their own (and some are slow learners). I will focus on cultivating joy in my own life by bringing my daily activities into greater alignment with my values:

  • Maintain perspective – The problems of our society won’t be solved overnight or even in my lifetime. Realize that I have been given privilege and talents that I should use to help others, while also taking the time to appreciate and enjoy my one life. 
  • Encourage beauty and creativity – I will do this by spending more time creating interesting and beautiful things, appreciating art and beauty, and helping other people live more creative lives. 
  • “Do all the good you can…” – My whole career has been using my writing to persuade people and win customers, now I plan to leverage that experience to advance the causes I most care about. I also want to teach some of these skills to disadvantaged groups to help level the playing field. 
  • Reclaim my religion – As a Christian, I’ve been particularly frustrated with the Christian Nationalist movement, as it basically contradicts every lesson Jesus taught and is responsible for driving people from the church in droves. Rather than abandon Christianity, I’m going to reclaim it and work harder to make sure people understand what Jesus preached—love for one’s neighbor without distinction for race, creed, gender or orientation. 
  • Stretch and grow – I will continue to try new things and won’t be afraid of failure. Since I’m no longer chasing a paycheck, I can no longer be “fired.” This means that I really cannot fail at anything I do (so long as I learn something along the way). I also know that engaging in learning and discovery are the best ways to stay interested and interesting. 
  • Accept that you can’t do it all – There are myriad ways for each of us to be useful in this world and everyone has a different role to play. Therefore, I may as well choose projects that fuel my personal enthusiasm and renew my spirit. 
  • Rest unapologetically – I’m going to implement my Wellness Strategy and pace myself, so I can continue these activities for as long as I can. I’m in this for the long haul. 

And, because I think this is extra important for so many of us now, I’d also like to share how I intend to do this.

Wellness Strategy

  • Limit exposure to 47 – This goes without saying. No more sneering orange face, no more grating, unintelligible voice. I can read analysis and transcripts to understand what he’s up to, but if I never see or hear from him again, that would be just ducky with me. Fortunately, there’s a good chance I’ll outlive him, and that will be a happy day indeed. 
  • Limit the news – Like many, I’ve become absolutely disgusted with the mainstream media for normalizing a despotic criminal and treating him like a legitimate candidate. Moreover, exposure to news 24/7 is unhealthy. Instead, I’ll be checking in once a day to get a synopsis from a few trusted sources and do my best to silence the chatter.
  • Limit social media – After the last election, I did some extreme curation of my social feeds. This was a lifesaver, and I will continue to keep my social media activity limited and positive. I want to spend more of my life offline than online. 
  • Stick with my tribe – Spend time strengthening my relationships with those who share my values. Avoid spending time with those who don’t. This isn’t the same as ostracizing those on the other side. It’s just choosing to preserve my peace. I’ll continue to work toward their deprogramming (“thoughts and prayers” anyone?), but I will not spend my time socializing with them. Unfortunately, this extends to family members. When some of them are willing to put a target on the backs of others, they cease to be family for me. If/when they realize their grave mistake and are ready to accept responsibility, I’ll be happy to welcome them back in my life.
  • Recharge and reset – Identify activities to proactively recharge my personal batteries before I “power off.” Spend time each week on creative projects to nourish my soul. Get out and attend museums, plays, lectures and other mind-broadening events. 
  • Embrace exercise and nature – Be physically active. Workout daily. Get out in nature regularly. Soak up the sunshine. Experience the weather. 
  • Focus on my health – Eat and drink in a healthy way. Reduce my sugar intake. No more using alcohol as an anti-anxiety med. No reliance on comfort meals that leave me feeling sluggish. Catch up on all the doctor’s appointments and screenings that I pushed out of the way when I was stressed or busy. 
  • Distract by diving in deep – Do meaningful volunteer work or start a side hustle or two. Learn new skills and subjects in order to advocate effectively. Keep myself distracted with useful, purposeful activity vs. doomscrolling and worrying about the future. Cross each bridge when I come to it. 

I found this exercise good for my psyche. It gives me a sense of purpose, but more importantly, it restores a sense of balance that I’ve been lacking for far too long. If last week’s election is leaving you feeling unmoored, I recommend taking a stab at your own sanity plan… and I’d love to hear about it. I want all my righteous peeps to not only survive, but thrive, in the difficult years ahead.

Living fearless

On By StormyIn Attitude, Children, Faith, Parents2 Comments

Sometime in my early 30s, I had an epiphany about fear. I had wanted to adopt an orphaned child (not an infant) ever since I was a kid myself, but when I finally got to the stage in my life where I could afford the process, I had doubts. I already had two wonderful biological children and a happy marriage. What if I adopted a kid who was deeply troubled and screwed all of that up? This fear was holding me back.

Meanwhile, a guest speaker at church told us about a mission trip she had taken to work with Mother Teresa in India. I won’t describe the story that changed my perspective (I’m sure it would lose something in my retelling) but the upshot of it was I realized I needed to have faith in a good outcome and plunge ahead despite my fear.quote-inaction-breeds-doubt-and-fear-action-breeds-confidence-and-courage-if-you-want-to-conquer-fear-dale-carnegie-32059

Those of you who have met my daughter Blossom know that I was immeasurably blessed by my leap of faith.

A conscious choice to “Be not afraid”

Fast forward a few years to when my husband was diagnosed with Parkinson’s Disease. A highly individualized illness, some people end up in a wheelchair in five years. Others still work for 15 or 20 years. About a quarter of those diagnosed end up with dementia. There was plenty to fear, but we made a conscious decision to not immerse ourselves too deeply in what “could be” and just focus on what he still could do in the here and now. So far, that decision has served us well, and we’ve been pleasantly surprised by the relatively slow progression of his disease.

I recently was alluding to some challenging family issues, mainly concentrated around my elderly parents, and I’ve determined that the source of these difficulties comes back to this same issue: Fear. My mother is living in fear more and more as she gets older. It’s causing her world to contract and leaving her confused and angry. It’s challenging for her adult children because the fear colors her perception—and our concern about her well-being is interpreted as attempts to take away her freedom.

We have nothing to fear but fear itself… and daycare costs

There are many times our lives require us to overcome our fear in order to move to the next phase: Going away to college, moving out on your own, interviewing for a job, asking someone on a date, proposing marriage, deciding to bring a child into the world, letting your children strike off on their own, learning to trust your adult children, learning to trust that things will work out, and finally trusting that, even when death is inevitable, God is by your side.

baby_moneyHaving a baby is a common example. Many young couples fear the responsibility of parenting. With news articles estimating that it will cost  a quarter of a million dollars to raise a newborn to age 18, it’s no wonder. Yet most of us plow ahead anyway—adjusting our lifestyles along the way—and consider ourselves the richer for it (even while our bank account takes a nosedive). Which brings me to my next point:

Bad things still will happen on occasion…but you’ll be okay

Living a fearless life doesn’t mean that you’ll experience smooth sailing from that point on. Some of the things you fear may actually come to fruition. But there is power in forging ahead anyway and usually you’ll find that 1) Most of the time the thing you feared doesn’t actually happen, or 2) On the rare occasion the bad outcome occurs, you’ll cope with it the best you can, learn something in the process and feel even stronger when you emerge on the other side. And because you’re now living a fearless life, you’ll view these episodes as infrequent storm clouds in your otherwise sunny life.

quote-you-can-sway-a-thousand-men-by-appealing-to-their-prejudices-quicker-than-you-can-convince-robert-a-heinlein-41-65-49Recent terrorist activity seems to have activated our society’s collective fear response and the result is ugly. The birth of this country was not a fear-based decision. Our forefathers (and mothers) had good reason to fear the quest for independence—after all, one man’s revolution is another man’s treason—but the shimmering ideal of a free nation was too enticing not to move forward despite their fears. Most of us lucky enough to be born in this country are here because we have ancestors that didn’t let fear stop them from leaving their homes behind in pursuit of a better life. As we watch our neighbors react to terrorist attacks by proposing fear-based restrictions on innocent people in the name of “protecting ’Merica” let’s remember that nothing could be LESS American.

 

 

The Ghost of Christmas Past

On By StormyIn Attitude, Entertaining/leisure, Faith, Parents1 Comment

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If the Crazy Target Lady doesn’t scare you straight, you’re beyond saving.

I have a confession to make: Christmas doesn’t really stress me out. That’s not particularly scandalous, but admitting this during the holiday season feels a bit like a betrayal to my hurried and harried sisterhood. Because, let’s face it: Many of the tasks that comprise “making the season bright” (e.g., baking, decorating, Christmas shopping, entertaining) often fall to the female gender.

I’m not trying to be sexist about gender roles. If we bring Christmas cookies or chocolate truffles to a holiday party, everyone knows the compliments go to my husband, the baker in the family. (Not surprisingly, I have trouble following directions.) But I think there’s some truth in my generalization.

What’s more, when it comes to holiday merrymaking, the motivations of men and women are often different. For example, a man going all Clark Griswold on his house is likely doing it because he gets a kick out of the results. But oftentimes his wife who is going from shop to shop trying to find gifts for teachers and distant in-laws is doing it more to fulfill an expectation than as a labor of love.

I used to be this woman until I realized it was sucking all the fun out of the holidays and really—once they stop being fun, what’s the point? Well, my spiritual side would argue that the point of Christmas is Christ. But I found that the whole religious aspect of Christmas was overshadowed by the incessant busyness and blatant commercialism, as well. Where were the moments of quiet reflection? Where was the magic?

One January, as I was taking down ornaments and swearing to myself that I’d “do it differently next year,” I composed a letter to myself. I’ve always loved “A Christmas Carol” and watching the musical “Scrooge” is a family holiday tradition, so let’s call this missive a “Message from the Ghost of Christmas Past.” The note starts like this:

Every year you do the same thing, Stormy. So this is a letter from your post-holiday, wiser self. I hope you will heed her message.

Then it has seven bullets of advice, addressing topics like:

  • Cookies – “We are never at a loss for cookies at any holiday gathering. Three types…are plenty.”
  • Gifts – “Buy little hostess gifts when you see them. They always come in handy. Keep track of what you get the kids so you don’t buy too much.”
  • Christmas Cards – “Keep it simple. Don’t feel compelled to send to people you aren’t connected to…and don’t worry about the ‘but they sent us one’ game.”
  • Traditions – “These are what make the holidays fun…Make Christmas about events and not things. Smaller gatherings are fun and meaningful.”

These are merely excerpts—my actual instructions to myself were more detailed and specific. I printed out my message and packed it away with my Christmas decorations where it was promptly forgotten until the following December.

The next year, when I pulled out my garlands and stockings the weekend after Thanksgiving, I spotted the note from Christmas Past and decided to heed my own advice. After all, if you can’t believe yourself, who can you trust?

That season, I took a low-key approach to the holidays and was pleasantly surprised. I was relaxed. Nobody died when I decided to skip sending Christmas cards that year. And we still enjoyed all of our favorite traditions. What a revelation! I felt like I owed a debt of thanks to my stressed self. 

Since then, my Christmas preparations have varied somewhat—some years I make more of an effort, some years less. But whatever I do, I do it for the joy of it and not because it’s an expectation. This flexibility has been critical this year as my mom’s surgery and recovery has consumed a good portion of the free time that my siblings and I would have to spend on holiday preparations.

By now my low-key approach to the holidays has become second nature. Yet, I still keep the note to remind me of my frazzled, younger years. There are some advantages to growing older and as Scrooge himself can attest, it’s never too late to master the fine art of keeping Christmas.

“I will honour Christmas in my heart, and try to keep it all the year. I will live in the Past, the Present, and the Future. The Spirits of all Three shall strive within me. I will not shut out the lessons that they teach!” 
                    ― Charles Dickens, A Christmas Carol

Power of the Clover!

On By StormyIn Attitude, Children, Entertaining/leisure, Faith, Getting older, Health/fitness, Work/careersLeave a comment

Anyone living in Minnesota has felt a bit unlucky this year. As KitKat and I have mentioned several times, we’ve had unprecedentedly lousy weather this spring/summer. In addition, work has been relentlessly busy. It’s all a bit wearing on the spirit, so in early June—when a brief break in the rain allowed me to get to some long-neglected yardwork—I found this:

Power of the Clover!
Power of the Clover!

We were preparing for my youngest child’s graduation open house and our home really isn’t large enough to host her many family and friends, so when I found the clover, I was excited. I may not believe in gambling for the big jackpot, but finding such a lucky token surely must mean something, right?

Feeling a bit beaten down and daunted by the task of getting my house and yard into tip-top shape for the party, I decided to embrace the power of the clover. No matter what transpired in the coming week, I was going to view it as good fortune. I believe that our outlook is mostly a matter of attitude, so if I used this symbol of good fortune as a reminder of my blessings, it would bring about a change in attitude that would ultimately benefit me. Well, that was my theory at any rate.

I started the week with my attitude adjustment firmly planted. I was lucky! Good things were going to happen at every turn! I just needed to keep my outlook positive and my eyes open. The previous three months may have been a bit—well, sucky—but the tide was a turnin’ now and everything would be going my way!

Despite my positive outlook, the week was inauspicious. While nothing terrible happened, it wasn’t exactly like Lady Luck was smiling upon me. I was a bit disappointed in my botanical harbinger. Then, at the end of the week, things took a decided turn for the worst. We had a system issue at work. This wouldn’t be terribly catastrophic except that we had just had a similar problem—one that cost our company time and money and our clients considerable disruption—a mere month earlier. We hadn’t experienced such a significant disruption to our business before that, and the thought that this new incident might mirror the earlier one was weighing heavily on our minds as we sought to troubleshoot the situation. “Power of the Clover!” I invoked. Maybe this was the situation for which the luck was intended? Well, the problem was resolved much quicker than previously, but it didn’t feel so much like good luck as just an avoidance of really bad luck.

Disenchanted with my clover, I turned my attention back to other matters. My daughter’s graduation was troubling me and not just because we were hosting a big party and the weather wasn’t cooperative. This was my youngest child’s graduation from high school. I would soon be an “empty nester.” Moreover, my birthday was looming ahead. So, combine bad weather/party stress/empty nest/mid-life crisis/anxiety about getting older and you get a stormy Stormy.

So on my long list of to-dos, was my annual exam. I was telling my nurse practitioner about all of the things going on in my life and she was nodding sympathetically. At the same time, she was telling me that I was in great shape. My blood pressure—great! My lungs sounded good. Pressing on my abdomen, she commented on my muscle tone and said I was in the best shape of anyone she had seen that day. I have to confess, I was feeling pretty good about myself. Maybe turning 48 wasn’t that big of a deal. Then it came time to do my breast exam. “There’s a lump. Feel it?” Sure enough. How did I miss that? (Maybe because I do a half-assed job at breast self-exams when I remember to do them at all?) “When was your last mammogram?” she asked. It had been 2 ½ years. Shit. “You need to get that checked out.” Next was my pelvic exam. “Your ovary is enlarged.” Double shit.And I had made an outrageous statement about cancer being more suited to my temperament than Parkinson’s in an earlier post. How stupid could a person be? I was just asking God for another big slice of humble pie! Even if neither were indications of cancer, it would likely take a while to get the all-clear report and the specter of doom would be hanging over my head all weekend—tainting my daughter’s party, Father’s Day and my birthday. Boo.

Fortunately (luckily?), my doctor’s office was able to line up diagnostic tests quickly: The mammogram would be later that afternoon, and an ultrasound of my ovaries would be done the next day.

Stormy freaking out.
Stormy freaking out.

I have to confess, I freaked out a bit while waiting for the tests—after all, I was facing TWO diagnostic tests for two DIFFERENT kinds of cancer, one of them highly fatal. I wasn’t sure of my odds, but they were doubled, right? It was like a frickin’ BOGO! Suddenly, the status quo looked pretty attractive. Preparing for my daughter’s open house seemed very insignificant. So did turning another year older. After all, it’s a blessing to tear another page off the calendar, right? A lot of people don’t get that privilege. What was wrong with me that I had been so absorbed with such petty matters?

Well, if I ever needed to invoke the Power of the Clover, this was it. And I’m happy to report that my little four-leaf friend came through for me. Both abnormalities were harmless cysts, not malignant tumors. Afterward, I was much more enthusiastic about the fact that I had a wonderful accomplished daughter whose graduation we were celebrating. (After all, this is a good thing, right?) And despite an ominous forecast, it was even sunny for her party. Yay! So lucky! And so what if I was turning another year older—that’s better than the alternative, right? And I was certainly another year wiser as well. Sooooo lucky!

My dad always says, “It’s better to be lucky than good.” And while, I can’t determine who coined that expression, there’s some truth in it. However, the part that’s not explained is that luck isn’t something you “find”—like a clover—it’s all around you, hiding in plain sight. Rather, it’s something you need to RECOGNIZE . In the end, the clover was just a lens through which I gained some much-needed perspective. I don’t expect this realization to last (it never does) but maybe I can come back and read this at a later date and that will help me remember the good fortune that surrounds me. And if it helps you keep a little perspective, too, then it’s all been worth it.

When the going gets tough…

On By StormyIn Attitude, Faith, Health/fitness, Marriage, Random, Relationships1 Comment

April is Parkinson’s Awareness Month and this is a disease that impacts me daily. About a decade ago, my husband was diagnosed with PD at the age of 44. This hit us out of the blue—there was no family history to foreshadow the condition and we were attributing his symptoms to something very mundane—a pinched nerve, carpal tunnel syndrome, etc.

I could write a lot about my husband and how terrifically he copes with the hand he’s been dealt… The man never complains or feels sorry for himself whereas I’m pretty sure that, in his shoes, I’d be the hostess of a 10-year pity party.

There are lots of nuances to his symptoms, but the upshot is this: His day is ruled by his medications and whether or not they are working. We sometimes refer to it as a Jekyll and Hyde existence but that doesn’t seem quite appropriate—while it’s “good” when his meds are “on” and “bad” when his meds are “off,” the whole Jekyll/Hyde analogy makes it sound like he turns evil, when he actually handles his off times with as much grace as any human being could muster.

Recently, he came up with another analogy—when his meds are off, he’s wooden and can’t move and when they are on he becomes “a real boy.” This seems more appropriate, and the transformation of how my husband comes to life when his medication kicks in is not unlike Pinocchio.

But I won’t presume to tell his story and instead will share my own. This is what I’ve learned having Parkinson’s “by proxy”…

1) There isn’t much I can control. I have a control-freak nature. And while having children was my first lesson in learning the limits of what I can control, dealing with my husband’s Parkinson’s is like being in graduate school. I find myself reciting the Serenity Prayer a lot. It’s a good prayer. I’m hoping one of these days it will sink in.

“I know God will not give me anything I can’t handle. I just wish that He didn’t trust me so much.”       –Mother Teresa

2) There’s a method to His madness. While I think the adage, “God doesn’t give you more than you can handle” has some truth in it, I also think He likes pushing you right up against your limits at times. For example, I’m not the stop-and-smell-the-roses type. For a Midwesterner, I’ve got a rather intense East Coast approach to life and Parkinson’s is a condition that could try the patience of the most easy-going Southerner.

When I would think of my husband or myself dealing with illness, I imagined being struck with a more common condition, like cancer. This is a horrible, awful thing to deal with—no doubt about it. However, in many cases you can “battle” cancer, and if you’re lucky, you can win. Trust me, I’m not wishing my husband had cancer instead of Parkinson’s, but I sometimes think that fighting cancer would be more in line with my temperament. I like to think I would bravely don my armor and be at his side to help slay the dragons. But Parkinson’s isn’t a dragon—it’s the mosquito in the room whose buzzing keeps you up all night and slowly drives you insane.

David Byrne, Cowboy Mambo

There’s a David Byrne song with some slightly blasphemous lyrics that captures my perspective on this, “Green grass grows around the backyard shithouse. And that is where the sweetest flowers bloom. We are flowers growin’ in God’s garden, and that is why he spreads the shit around.”

Now, I don’t believe in a spiteful God, but I do think He is aware that my Serenity Garden is a bit overrun with weeds–and that my husband’s illness is part of a larger plan intended to help fertilize the flowers.

3) God provides help where you least expect it. Despite the negative lessons I’ve learned about myself, I’ve also learned that I’m not completely on my own. While testing me big time on the patience front, God has also sent some unlikely angels to support me through this process. People who accept me despite the aforementioned shortcomings. I’m very thankful for these people in my life.

Diamond or basketcase? The jury is still out...
Diamond or basketcase? The jury is still out…

4) We all need to cut each other some slack. There’s one aspect of my lack of patience that I’ll accept, and that is my growing intolerance of hatred and judgment and negativity. Life can be tough. But most of us are doing the best we can, and we all need to remember that. When it comes to disability awareness, I’m probably on the “more enlightened” end of the spectrum having worked for two organizations serving people with disabilities and consequently spending a lot of time around people with various conditions. Despite this experience, I cringe when I think about past incidents where I might have thought someone’s slowness was just disregard for other people’s time or assumed that someone’s lack of balance was the result of too many drinks. I know there are times when my husband’s symptoms are probably misinterpreted and that if others knew the true cause they would be more tolerant and considerate as well.

5) It’s anybody’s guess. Parkinson’s is a very individual disease. While there’s a typical progression to the illness, not everyone experiences their symptoms the same way. Some people’s illness progresses very quickly, others more slowly. I have no idea exactly what’s in store for my future–but then again, does anybody? I also have no idea how well I’ll continue to cope with it all. My only hope is that I continue to recognize the blessings in my life and appreciate those who are helping my husband and me along this journey.